Hey Lori

Thanks for your comment. I am, indeed. I am being retest tomorrow to see if they've come back up so have my fingers crossed all is okay, to help relieve some anxiety.

The results alone wouldn't necessarily bother me but it's the fact I am still symptomatic from when and why I was first tested. They could all be unrelated but the fatigue is playing on my mood and health anxiety so things seem worse than they potentially are but my joints are still aching and if anything, getting worse so my mind is wondering. Hopefully unnecessary and the results were based on a past infection that's still resolving 🙂

I almost always have a touch of high white count upwards 16 around there
Vicki

I was diagnosed with MDS in March of this year. I saw a hematologist who did a bone marrow biopsy and I was started on Dacogen, five days a week with a three week rest period. My WBC dropped horribly low. So after two rounds of the five day a week regimen, Dr decided that regimen was too strong for me and reduced it to four days a week, with a four week rest in between treatments. He did this to see if my body would recover and raise my white blood cell count naturally. Fortunately, so far this is working! I have not had a blood transfusion in three or four weeks, which I think is great. My platelets were a little low last week, but hopefully they’ll be up this week. I appreciate my hematologist “tweaking“ my treatment plan. Everybody is different, and reacts differently to medications & treatment regimens. I am petite, 5 feet tall and weigh just over 100 pounds. So, I may not need the same amount of medication a person much larger than me, for example, would.
My white cell count (or absolute neutrophil count) is what protects you from infection. I am taking an antibiotic, antifungal & antiviral pill(s) every day which I don’t like. But it’s better than ending up in the ER with a low neutrophil fever and then be admitted for 10 days on IV meds.
Best of luck to you. I feel very lucky to be part of this forum!