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Diagnosed with Mycosis fungoides. Don’t understand what to expect?

Blood Cancers & Disorders | Last Active: Jun 18 6:24pm | Replies (34)
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@aloha2012

06-16-2025
Hey, so sorry you are having these issues over the past 30 years. That's a long time to be uncomfortable. We have the same lite box that you have. It's in our dining room which is fine as we never eat there. Since your lesions have advanced are you continuing to do the lite therapy? Are you applying any meds to those areas?

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Replies to "06-16-2025 Hey, so sorry you are having these issues over the past 30 years. That's a..."
lav3 | @lav3 | Jun 16 11:18pm

I have mycosis fungoides. What light therapy do you use? What nm near
infra red?

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cj1o | @cj1o | Jun 17 7:03am

Yes, I continue with phototherapy and apply steroid cream to lesions. However, I cease steroid treatment as soon as particular lesions become less "angry" in appearance, ie, begin to fade.

I also limit phototherapy frequencies and exposure times when overall lesions begin to fade. I am experiencing the side effects of long term NB-UVB treatments, ie, photoaging, xerosis, actinic damage, pruritis and photocarcinogenesis (only basil cell so far).

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