New alarming symptoms

I have been diagnosed with fibromyalgia after having the flu in 1996. I continued with mild pain and fatigue that had a remitting and relapsing pattern, ut I was able to work full time as a nurse, In 3/2020 I had a mild case of covid, but the fibromyalgia seemed works then in 3/2022 I had bilateral PE, aortic embolism, mild R basal ganglion lacunar infarct now showing micro vascular disease in the brain,, organoaxial volvulus stomach, woth Hgb of 4,8, I had blood transfusions, iron transfusions, and surgical repair of the herniated stomach, but since have had post exertional malaise, much worse pain and weakness in legs and hands, unable to shower or cook without becoming short of breath and increased upper back pain, I have not found a doctor who has the time of interest yet in helping me try and find out why,, but the reading that I have been doing reactivation of varicella fits, You don’t have to have rash for this to be happening, I also have a history of EBV, and possibly CMV. We know that covid can reactivate viruses, I have long thought that fibromyalgia and chronic fatigue syndrome were symptoms of some form of viral reactivation, You can google and find articles from the NIH and other reputable studies to being into your doctor and see what they think, I wish you luck, There has been too little research into these syndromes including CIRS which all seem to be medical jargon for pain, fatigue, foggy thinking, and over all decreased ability to function. Have you found any diet or exercise routine thst has helped you?

There are foods that are inflammatory and foods that are anti inflammatory. One of the biggies to avoid is fried foods (a weakness) and ultra-processed.
There are many sites online that I’ve found helpful. Search for the words and see what comes up. Just remember there is no miracle cure for fibromyalgia. We treat it, deal with it, and sometimes it’s all we can do to handle it. Every person has a different level of pain or discomfort. Some people’s symptoms, like sleep, are worse or better than others. Get to know yours. See if you can see a pattern. Don’t be afraid to say, “I feel like crap today and I’m not going to do my grocery shopping today.” Don’t punish yourself if you fall off the healthy food or exercise band wagon. Reward yourself once in a while for even little accomplishments.
Good luck. It sounds like you have a plate full. Some of the symptoms may overlap and even exacerbate each other. Take on your issues one at a time. We didn’t get it all at once; we can’t treat it all at once.
Good luck 🥰

I'm 53 yrs. Old, a recovering addict and have such severe (tears rolling down my face) pain, with anxiety, depression, it's gotten to the point where I'm not sleeping but maybe 0-3 hrs. Of interrupted sleep. I don't have a diagnosis yet. I've been researching and it all points to fibro. The e.r.s are a joke where I live and can't get an appt. With a PCP(primary care physician) for 3-4 months. It has become the most unbearable pain I've ever experienced on a night to night basis. Does anyone have any recommendations or ideas to get me help. I'm to the point of relapsing, I have worked to damn hard to go backwards. Desperate in wa. State

I'm so sorry to hear this Artemis. What a difficult situation. I feel for your boy and you as well. I don't know what his doctors say, but yeah, it sounds like rehabs aren't the answer.
I'm sure you've already seen neurologists, right?

Cannibis is legal here in Maine, but I don't know if it would help. Wish I could offer more. Narcotics Anonymous saved my life. It focuses on abstinence from all drugs.

I will say a prayer for you and your son, and hopefully relief will come soon.

Best,

Vicki

I use ice packs to my thighs and just numb them. It helps short-term. I take Epsom salt baths and use mg gluconate and maleate at bedtime.
Just purchased Baxyl liquid (take daily) and Theraworx (topical foam) from Amazon as per recommendation by others in the chat. I give it a 30 day usage and evaluate. Stay strong and pray.

I’m 43 and have been dealing with this for 11 years.
It’s been getting worse over the past two years
It’s always there but the FLARES are just intense
I haven’t seen a dr for it since I was diagnosed I took gabapentin but it stopped working. My rheumatologist (I only seen once) basically laughed. Said it was a trash can disease ,repeatedly pushed on my inner elbow (way after it was confirmed ). He seen how much it hurt. I also felt extremely disregarded so I never went back
It is starting to be too much muscle wasting feeling with so little strength in my arms and legs I can barely walk or hold a dinner plate in my flares that seem to be coming after I do ANYTHING I think that’s because they found 4 nodules in my right lung 1 regular and 3 ground glass. I have shortness of breath irregular heart rate I went in 2 days after we thought I was having a heart issue. D Dimer test was positive but ct found no clots but the lung problems. So I have to wait 3 months to have another ct to see if there’s any changes. But I have a lot of the symptoms
But I believe that might be why I am in the height of my flares more consistently
I am ready for pain meds but I was thinking similar to you.
I only want it for the bad days. The rest is survivable. O don’t want anything more longtwrm. I also have hypothyroidism and it’s intense a lot of my health problems have similiar symptoms
I feel like I will be in a wheelchair one day with my legs and the difficulty holding them up
Sorry so long. I’m just in a place where I feel like I’ve had enough
Not depressed or anything. I have a therapist for talk therapy but I’m not emotionally down. I’m just ready for some kind of relief I guess. I used to build houses,lay sod, CNA furniture refurbished all so many things. Doing so little is more painful then the symptoms sometimes

I'm 53 yrs. Old, a recovering addict and have such severe (tears rolling down my face) pain, with anxiety, depression, it's gotten to the point where I'm not sleeping but maybe 0-3 hrs. Of interrupted sleep. I don't have a diagnosis yet. I've been researching and it all points to fibro. The e.r.s are a joke where I live and can't get an appt. With a PCP(primary care physician) for 3-4 months. It has become the most unbearable pain I've ever experienced on a night to night basis. Does anyone have any recommendations or ideas to get me help. I'm to the point of relapsing, I have worked to damn hard to go backwards. Desperate in wa. State

I am confused in the posting they mentioned nothing about drugs or addiction. Why are you telling them not to pick up? Pick up what?
There are several things that can cause this person’s problems and people reply about addiction. Very Confusing this persons asking for suggestions to medical problems.

I am confused in the posting they mentioned nothing about drugs or addiction. Why are you telling them not to pick up? Pick up what?
There are several things that can cause this person’s problems and people reply about addiction. Very Confusing this persons asking for suggestions to medical problems.