New alarming symptoms

I have been diagnosed with fibromyalgia after having the flu in 1996. I continued with mild pain and fatigue that had a remitting and relapsing pattern, ut I was able to work full time as a nurse, In 3/2020 I had a mild case of covid, but the fibromyalgia seemed works then in 3/2022 I had bilateral PE, aortic embolism, mild R basal ganglion lacunar infarct now showing micro vascular disease in the brain,, organoaxial volvulus stomach, woth Hgb of 4,8, I had blood transfusions, iron transfusions, and surgical repair of the herniated stomach, but since have had post exertional malaise, much worse pain and weakness in legs and hands, unable to shower or cook without becoming short of breath and increased upper back pain, I have not found a doctor who has the time of interest yet in helping me try and find out why,, but the reading that I have been doing reactivation of varicella fits, You don’t have to have rash for this to be happening, I also have a history of EBV, and possibly CMV. We know that covid can reactivate viruses, I have long thought that fibromyalgia and chronic fatigue syndrome were symptoms of some form of viral reactivation, You can google and find articles from the NIH and other reputable studies to being into your doctor and see what they think, I wish you luck, There has been too little research into these syndromes including CIRS which all seem to be medical jargon for pain, fatigue, foggy thinking, and over all decreased ability to function. Have you found any diet or exercise routine thst has helped you?

There are foods that are inflammatory and foods that are anti inflammatory. One of the biggies to avoid is fried foods (a weakness) and ultra-processed.
There are many sites online that I’ve found helpful. Search for the words and see what comes up. Just remember there is no miracle cure for fibromyalgia. We treat it, deal with it, and sometimes it’s all we can do to handle it. Every person has a different level of pain or discomfort. Some people’s symptoms, like sleep, are worse or better than others. Get to know yours. See if you can see a pattern. Don’t be afraid to say, “I feel like crap today and I’m not going to do my grocery shopping today.” Don’t punish yourself if you fall off the healthy food or exercise band wagon. Reward yourself once in a while for even little accomplishments.
Good luck. It sounds like you have a plate full. Some of the symptoms may overlap and even exacerbate each other. Take on your issues one at a time. We didn’t get it all at once; we can’t treat it all at once.
Good luck 🥰

I'm 53 yrs. Old, a recovering addict and have such severe (tears rolling down my face) pain, with anxiety, depression, it's gotten to the point where I'm not sleeping but maybe 0-3 hrs. Of interrupted sleep. I don't have a diagnosis yet. I've been researching and it all points to fibro. The e.r.s are a joke where I live and can't get an appt. With a PCP(primary care physician) for 3-4 months. It has become the most unbearable pain I've ever experienced on a night to night basis. Does anyone have any recommendations or ideas to get me help. I'm to the point of relapsing, I have worked to damn hard to go backwards. Desperate in wa. State

I'm so sorry to hear this Artemis. What a difficult situation. I feel for your boy and you as well. I don't know what his doctors say, but yeah, it sounds like rehabs aren't the answer.
I'm sure you've already seen neurologists, right?

Cannibis is legal here in Maine, but I don't know if it would help. Wish I could offer more. Narcotics Anonymous saved my life. It focuses on abstinence from all drugs.

I will say a prayer for you and your son, and hopefully relief will come soon.

Best,

Vicki