My history with MF:

1997 –
• June – Mycosis Fungoides (MF) diagnosed.
• August – Mechlorethamine full body painting treatments begin.
• November – End course of mechlorethamine treatments. Could not tolerate.
• December – Begin radiological phototherapy UVB three times per week as hospital outpatient.

1999 –
• January – Radiological phototherapy UVB treatments at hospital ends. Remission indicated.
• February -- Self applied prescription strength topical steroid treatments begin.

2001 –
• October -- MF plaques and patches increase in frequency and intensity. Topical steroid treatments ineffective in controlling. First relapse indicated. Higher strength topical steroid prescribed.

2007 –
• April – New plaques and patches diagnosed again as “very suspicious for MF”. A second relapse indicated.
• May -- Begin home localized treatments using Sperti Sedona UV table lamp on suspicious lesions and continue prescription steroids treatments.

2008 –
• January through December -- Continue home localized UV and steroid topical treatments.
• Continue annual full body exams, biopsies as needed.

2016 – 2019
• July -- Increase in frequency and intensity of patches and plaques in new locations. A third relapse indicated. Continue topical steroid and begin full body exposure to summer sunlight to control.

2020 –
• March -- Increase in frequency and intensity of patches and plaques. Topical steroids used to control outbreaks no longer effective.
• September -- Pathology reports diagnosed biopsies of plaques and patches as MF. A fourth relapse indicated. Doctor recommends lifelong radiological phototherapy full body NB-UVB treatments from September 2020 to December 2020 as hospital outpatient.

2021 –
• January -- Radiological phototherapy – Doctor recommends full body NB-UVB ongoing and continuing as lifelong treatment plan via home unit.

With my doctor's prescription, in January 2021, I ordered the Daavlin Series 7 - 10 lamp full body UVBNB unit and vary exposure frequencies from 1 to 3 times per week as necessary to control lesions. Still using original lamps. The MF lesions have in 2024 - 2025 advanced in frequency and in novel areas of my body including where the "sun does shine".

After ~ 30 years of managing this disease, it appears the MF has now become more aggressive. At 78 years of age, I am otherwise quite healthy. I will see my MF dermatologist in December 2025.