Request Suggestions: How did you find a living donor?

Posted by kzeiss @kzeiss, Oct 18, 2023

My son is in great need of a kidney transplant. How do you phrase a post for a living donor kidney request? Are there any sample requests that have worked? What kind so information do you include/not include? Any suggestions, advice or contacts for information are greatly appreciated.Thank you so much.

Interested in more discussions like this? Go to the Transplants Support Group.

@alive

Thank you very much for your advice! I don’t really know what caused her kidney damage. I know that the working kidney has 25% function left.

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@alive It can be a challenge to preserve as much function as possible. When you go over to the Kidney and Bladder support group, you will find discussions about working with impaired kidney function. Getting optimum results to maintain function, a person has to be very mindful about sodium, calcium, potassium, and phosphorous. And then there is the daily fluid intake, and appropriate protein intake for the kidney levels. It's quite the challenge. I hope your niece is being followed by a great nephrologist and renal dietician! Addressing the underlying cause of the kidney issue will also be a benefit.
Ginger

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@alive

I found out today that my 35-year old niece will need a kidney transplant by the end of the year. I don’t really know what caused her kidney damage or any other details. What can we do to find her a donor? We have shared the news with the immediate family. My niece was adopted, so I don’t know how that will affect her ability to find a match within the family.

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See the tips in this discussion:
- Living Donor Request Suggestions: How did you find a living donor?
https://connect.mayoclinic.org/discussion/living-donor-request-suggestions/

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@alive

I found out today that my 35-year old niece will need a kidney transplant by the end of the year. I don’t really know what caused her kidney damage or any other details. What can we do to find her a donor? We have shared the news with the immediate family. My niece was adopted, so I don’t know how that will affect her ability to find a match within the family.

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@alive - in addition to the great advice you've already received, we have a blog post that might give you some additional suggestions. You can find it here: Finding a Living Donor: Where do I start? - https://connect.mayoclinic.org/blog/transplant/newsfeed-post/finding-a-living-donor-where-do-i-start/

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Have you ever wanted to be a Super Hero? Has anyone ever wanted to safe a life? What would make you consider being a organ donor? Getting to know Dalease and her story will make your heart skip a beat.

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@drobrown

Have you ever wanted to be a Super Hero? Has anyone ever wanted to safe a life? What would make you consider being a organ donor? Getting to know Dalease and her story will make your heart skip a beat.

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Welcome, Kidney4Dee (@drobrown). I read from your profile that you are searching for a kidney donor. Here on Mayo Clinic Connect, you will meet other transplant recipients, people on the waiting list and people who have donated.

In these discussions, you can find tips for how other members found organ donors:
- Request Suggestions: How did you find a living donor?
https://connect.mayoclinic.org/discussion/living-donor-request-suggestions/
- Ways to Advertise: How Did you Find a Kidney Donor?
https://connect.mayoclinic.org/discussion/ways-to-advertise/
Do you have family and friends who are helping and supporting your search for a donor?

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@colleenyoung

Welcome, Kidney4Dee (@drobrown). I read from your profile that you are searching for a kidney donor. Here on Mayo Clinic Connect, you will meet other transplant recipients, people on the waiting list and people who have donated.

In these discussions, you can find tips for how other members found organ donors:
- Request Suggestions: How did you find a living donor?
https://connect.mayoclinic.org/discussion/living-donor-request-suggestions/
- Ways to Advertise: How Did you Find a Kidney Donor?
https://connect.mayoclinic.org/discussion/ways-to-advertise/
Do you have family and friends who are helping and supporting your search for a donor?

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Hello,
I really appreciate the recommendations you suggested. I will get that question out as soon as I can. Those are real important questions that will give me a since of direction. To answer the question about my family support/ I have little to none support. My man supporters come from employers. I am now starting to utilize organizations geared to my specifies condition.
Thank you in advance.

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@drobrown

Hello,
I really appreciate the recommendations you suggested. I will get that question out as soon as I can. Those are real important questions that will give me a since of direction. To answer the question about my family support/ I have little to none support. My man supporters come from employers. I am now starting to utilize organizations geared to my specifies condition.
Thank you in advance.

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In order for me to have a double lung transplant, I needed to have support at home. I would gather that it would be the same for all transplants. You might not be in as bas of shape as I was, but my surgeon wouldn't even proceed without meeting my main support person (who had to be at least 18 years old).

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My mother in law has stage 4 liver cancer that means the world to my wife and I. This past year has been incredibly tough on us all. This is our last stretch and we'd love your help and support in spreading our story.In her own words below:Hi Everyone, my name is Aicha. I'm an ex-cancer patient survivor who thought I can have a chance at a normal life again with my three beautiful children, but life has a way of doing what it does best.In 2018, I was diagnosed with stage 4 colon cancer with countless tumors in my liver. At the time, I was given little hope from all discussions with doctors and was told that I would not be able to live.But I began chemotherapy and fought with everything I had for my family.Against the odds, I responded so well that I underwent a major liver surgery, which put me into remission for four precious years.Last year, my world changed again when new tumors appeared. Again, I am told I have no resolution and my only chance for survival is a liver transplant through a living donor. My family tried to become donors, but sadly, none were a match.I am reaching out to the public with an urgent plea. I have a beautiful life with three wonderful children and a family who would do anything to keep me here with them. A liver transplant from a living donor would help give me another chance at life.I am mentally, physically, and emotionally exhausted.

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@medo1717

My mother in law has stage 4 liver cancer that means the world to my wife and I. This past year has been incredibly tough on us all. This is our last stretch and we'd love your help and support in spreading our story.In her own words below:Hi Everyone, my name is Aicha. I'm an ex-cancer patient survivor who thought I can have a chance at a normal life again with my three beautiful children, but life has a way of doing what it does best.In 2018, I was diagnosed with stage 4 colon cancer with countless tumors in my liver. At the time, I was given little hope from all discussions with doctors and was told that I would not be able to live.But I began chemotherapy and fought with everything I had for my family.Against the odds, I responded so well that I underwent a major liver surgery, which put me into remission for four precious years.Last year, my world changed again when new tumors appeared. Again, I am told I have no resolution and my only chance for survival is a liver transplant through a living donor. My family tried to become donors, but sadly, none were a match.I am reaching out to the public with an urgent plea. I have a beautiful life with three wonderful children and a family who would do anything to keep me here with them. A liver transplant from a living donor would help give me another chance at life.I am mentally, physically, and emotionally exhausted.

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Hello @medo1717, welcome to Mayo Clinic Connect.

I moved your discussion and combined it with the discussion titled:

"Request Suggestions: How did you find a living donor?"
- https://connect.mayoclinic.org/discussion/living-donor-request-suggestions/

You may notice I removed the link for gofundme as self-promotion and soliciting is now allowed on Mayo Clinic Connect, https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/.

However, you may find many useful strategies, tactics and ideas on how to get your story out there and how you can help your mother-in-law find a living donor.

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@keggebraaten

@alive - in addition to the great advice you've already received, we have a blog post that might give you some additional suggestions. You can find it here: Finding a Living Donor: Where do I start? - https://connect.mayoclinic.org/blog/transplant/newsfeed-post/finding-a-living-donor-where-do-i-start/

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Thank you everyone for your suggestions! My niece has received a kidney from an anonymous donor. She is doing great!

Her family (she was adopted) and friends from church and work tested to see if they matched her. Someone was a match and didn’t reveal their identity.

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