I have idiopathic peripheral neuropathy. It started approximately 5 yrs ago. It is not hereditary, I have not had any injuries or damaged my feet in any way. My feet hurt 24/7 with numbness, feet on fire, feet feel frozen, shooting shock pains, etc. My neurologist has prescribed gabapentin and Tramadol. The medicine does help decrease the severity of my pain by 30-40%. The symptoms are now affecting my ability to walk, keep my balance, and stand for any period of time.
I’ve tried everything - vitamins, red light therapy, oils, creams, etc. This neuropathy has severely impacted my daily activities and my life.
I’ve read these comments but does anyone have something that will decrease the pain?
I have idiopathic peripheral neuropathy. It started approximately 5 yrs ago. It is not hereditary, I have not had any injuries or damaged my feet in any way. My feet hurt 24/7 with numbness, feet on fire, feet feel frozen, shooting shock pains, etc. My neurologist has prescribed gabapentin and Tramadol. The medicine does help decrease the severity of my pain by 30-40%. The symptoms are now affecting my ability to walk, keep my balance, and stand for any period of time.
I’ve tried everything - vitamins, red light therapy, oils, creams, etc. This neuropathy has severely impacted my daily activities and my life.
I’ve read these comments but does anyone have something that will decrease the pain?
I have all the same symptoms as you.
I was on Gabapentin for years and it did nothing.
I was also on all different meds over the past 10 years with no relief.
Went to pain management and they put me on Tramadol 25 mg twice a day,if needed.
That helps my hurting feet ,but I can only have 2 a day, so I take them in the evening and before bed.
They’re afraid I’ll become addicted if I take more than that and it’s become a hassle honestly to get my prescriptions filled.
I recently broke my fibula and my tibia and they’re keeping the pins in due to my neuropathy
I haven’t put any weight on that ankle yet because since I have no feeling in my feet and legs,except pins and needles,they’re afraid if I hurt my ankle,I won’t feel it.
I am in pain everyday in my feet.
There’s not one day that I’m pain free.
I usually take Tylenol along with the Tramadol 50mg, and it helps for a few hrs.
It seems whenever I have any kind of infection,it manifests in my ankles.
They will get shooting pains, for hours, and nothing helps it, even the Tramadol doesnt work.
My neurologist started giving me Rituxan infusions, supposedly to help with the pins and needles but I have only had a few of then, and don’t really feel any better.
Have a follow-up appt this week with my neurologist.
I have idiopathic peripheral neuropathy. It started approximately 5 yrs ago. It is not hereditary, I have not had any injuries or damaged my feet in any way. My feet hurt 24/7 with numbness, feet on fire, feet feel frozen, shooting shock pains, etc. My neurologist has prescribed gabapentin and Tramadol. The medicine does help decrease the severity of my pain by 30-40%. The symptoms are now affecting my ability to walk, keep my balance, and stand for any period of time.
I’ve tried everything - vitamins, red light therapy, oils, creams, etc. This neuropathy has severely impacted my daily activities and my life.
I’ve read these comments but does anyone have something that will decrease the pain?
Welcome @jancnkc, I wish there was a one stop answer that worked for everyone with the pain from neuropathy but I'm not sure it exists. Best thing that can help those of us with neuropathy is to become a better advocate for ourselves by learning as much as we can about the condition and what treatments are available that may provide some form of relief. A good starting point is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/therapies/.
Hi Ann, my neuropathy is not due to diabetes. It’s post-surgical from being in a medically induced coma for a few weeks. They don’t know for sure, but seems to be because my body was fighting for its life focusing on major organs, so periphery gets ignored. Nerve damage due to lack of blood flow to the area (feet esp, and lower legs). How can I help you? What’s yours due to, if you know. Would you like to know what helps me?
I found that stretching seems to agitate the nerves and makes the pain and needles worse. Everyone is different. I have a bottle of ALA and it says to take 2 tablets on an empty stomach, and 2 total 1,500mg. I have not tried it yet. Maybe I should start with just one. Have you noticed any difference with it? If so, after how long? Thank you.
ALA is very effective for me in reducing foot numbness. I started with 300 mg per day for two years before numbness began to advance. Then, I increased the dosage to 600 mg per day. It again reduced the numbness for me. Note: I do this with my primary's oversight to make sure no conflicts develop with other meds I'm taking.
ALA is very effective for me in reducing foot numbness. I started with 300 mg per day for two years before numbness began to advance. Then, I increased the dosage to 600 mg per day. It again reduced the numbness for me. Note: I do this with my primary's oversight to make sure no conflicts develop with other meds I'm taking.
I just bought a bottle on Amazon. I haven't taken any yet. I am only taking Gabapentin and it looks like there is no interaction. I am also taking Nervive, but don't know if it has any affect. The tablets are 750mg each of Alpha Lipoic Acid. Just by coincidence, I see the neurologist Wednesday for the yearly check. I actually forgot the appointment. He only checks and tells me I am getting a bit worse. But he will surely know about ALA, so I will wait to see what he says. Thank you!
I am trying different things, and trying to be objective about them.
Acupuncture: I think it is helping a bit.
Walking: As much as possible. I believe it helps blood flow to the legs.
Mama Bear Cream: I apply it once or twice a day. I don't know if it works at all, but it's not expensive.
Jacuzzi: I just started that. Again to stimulate blood flow to the legs.
I take Gabapentin, 400mg, 2x a day.
I went to a "free" session by a chiropractor. I think it is a scam and will cancel an appointment for a "full diagnosis."
One newsletter i subscribe to , just sent this........yet , another treatment, added to a Tens unit, ultrasound wand, softwave therapy..........this one, and i know nothing about it, but i did scan the internet for some explanation.....it is called..Neurogen X electirc therapy.........it is supposed to work deepen than a Tens unit............and a NervePro 2.............don't know if this is of any use to anyone........but, i'm passing on things i've heard about, just in case one of there will work for one of you. I will be doing my first Softwave treatment this Wednesday.........
Gentle yoga and stretching. Egoscue. Tai Chi. QiGong. I take ZERO pills/drugs not even baby aspirin. Zero sugar in diet. Whole foods. Anti inflammatory diet. Gluten-free. I move when in pain. Take ALA 600 mg. And B-12.
One newsletter i subscribe to , just sent this........yet , another treatment, added to a Tens unit, ultrasound wand, softwave therapy..........this one, and i know nothing about it, but i did scan the internet for some explanation.....it is called..Neurogen X electirc therapy.........it is supposed to work deepen than a Tens unit............and a NervePro 2.............don't know if this is of any use to anyone........but, i'm passing on things i've heard about, just in case one of there will work for one of you. I will be doing my first Softwave treatment this Wednesday.........
Thank you. Please let me know. I will see my neurologist for a routine exam on Wednesday when you are getting your Softwave treatment. I plan to just write down a few supplements and methods and ask him if any of those can help. I hope it helps you.
Connect
Connect
Like
Helpful
Hug
I have idiopathic peripheral neuropathy. It started approximately 5 yrs ago. It is not hereditary, I have not had any injuries or damaged my feet in any way. My feet hurt 24/7 with numbness, feet on fire, feet feel frozen, shooting shock pains, etc. My neurologist has prescribed gabapentin and Tramadol. The medicine does help decrease the severity of my pain by 30-40%. The symptoms are now affecting my ability to walk, keep my balance, and stand for any period of time.
I’ve tried everything - vitamins, red light therapy, oils, creams, etc. This neuropathy has severely impacted my daily activities and my life.
I’ve read these comments but does anyone have something that will decrease the pain?
Yes. I would like to connect with people with non-diabetic PN.
I have all the same symptoms as you.
I was on Gabapentin for years and it did nothing.
I was also on all different meds over the past 10 years with no relief.
Went to pain management and they put me on Tramadol 25 mg twice a day,if needed.
That helps my hurting feet ,but I can only have 2 a day, so I take them in the evening and before bed.
They’re afraid I’ll become addicted if I take more than that and it’s become a hassle honestly to get my prescriptions filled.
I recently broke my fibula and my tibia and they’re keeping the pins in due to my neuropathy
I haven’t put any weight on that ankle yet because since I have no feeling in my feet and legs,except pins and needles,they’re afraid if I hurt my ankle,I won’t feel it.
I am in pain everyday in my feet.
There’s not one day that I’m pain free.
I usually take Tylenol along with the Tramadol 50mg, and it helps for a few hrs.
It seems whenever I have any kind of infection,it manifests in my ankles.
They will get shooting pains, for hours, and nothing helps it, even the Tramadol doesnt work.
My neurologist started giving me Rituxan infusions, supposedly to help with the pins and needles but I have only had a few of then, and don’t really feel any better.
Have a follow-up appt this week with my neurologist.
Welcome @jancnkc, I wish there was a one stop answer that worked for everyone with the pain from neuropathy but I'm not sure it exists. Best thing that can help those of us with neuropathy is to become a better advocate for ourselves by learning as much as we can about the condition and what treatments are available that may provide some form of relief. A good starting point is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/therapies/.
You might also want to scan through the many discussions and comments from members on "neuropathy burning feet" - https://connect.mayoclinic.org/search/?search=neuropathy+burning+feet,
-
Like -
Helpful -
Hug
1 ReactionHi Ann, my neuropathy is not due to diabetes. It’s post-surgical from being in a medically induced coma for a few weeks. They don’t know for sure, but seems to be because my body was fighting for its life focusing on major organs, so periphery gets ignored. Nerve damage due to lack of blood flow to the area (feet esp, and lower legs). How can I help you? What’s yours due to, if you know. Would you like to know what helps me?
-
Like -
Helpful -
Hug
1 ReactionALA is very effective for me in reducing foot numbness. I started with 300 mg per day for two years before numbness began to advance. Then, I increased the dosage to 600 mg per day. It again reduced the numbness for me. Note: I do this with my primary's oversight to make sure no conflicts develop with other meds I'm taking.
-
Like -
Helpful -
Hug
2 ReactionsI just bought a bottle on Amazon. I haven't taken any yet. I am only taking Gabapentin and it looks like there is no interaction. I am also taking Nervive, but don't know if it has any affect. The tablets are 750mg each of Alpha Lipoic Acid. Just by coincidence, I see the neurologist Wednesday for the yearly check. I actually forgot the appointment. He only checks and tells me I am getting a bit worse. But he will surely know about ALA, so I will wait to see what he says. Thank you!
One newsletter i subscribe to , just sent this........yet , another treatment, added to a Tens unit, ultrasound wand, softwave therapy..........this one, and i know nothing about it, but i did scan the internet for some explanation.....it is called..Neurogen X electirc therapy.........it is supposed to work deepen than a Tens unit............and a NervePro 2.............don't know if this is of any use to anyone........but, i'm passing on things i've heard about, just in case one of there will work for one of you. I will be doing my first Softwave treatment this Wednesday.........
-
Like -
Helpful -
Hug
2 ReactionsWonderful, that no pills. I am trying same. May I ask where do you buy your ALA 600Mmg from and brand ?
Regards
Arvin
Thank you. Please let me know. I will see my neurologist for a routine exam on Wednesday when you are getting your Softwave treatment. I plan to just write down a few supplements and methods and ask him if any of those can help. I hope it helps you.