How much time do you spend managing bronchiectasis?

Posted by bronchiectasaurus @bronchiectasaurus, 4 days ago

I conservatively estimate I spend 2 hours a day doing lung protocol stuff for my bronchiectasis. That includes at least 2 long saline nebulizer/Aerobika sessions, 2 nasal lavages, and rinsing, boiling, sanitizing, prepping (such as boiling, cooling, and storing distilled water for nasal lavage), and other maintenance.

I have — or had — 16 waking hours in a day. With all the lung stuff I now have 14. My day has been reduced by 12.5%. It’s worth it, to be able to breathe and reduce respiratory infections, but it has a real impact.

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@sheila7a

Hi
10-15 minutes of aerobika?
I soak in hydrogen peroxide.
I tried alcohol a couple of times. That smell knocks me out. Oofta!
I looked up if was okay to pour alcohol down drain after using it.
Google said nope could start a fire in your pipes!
Switched to peroxide.
What do you think?
Alcohol takes less time.

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I haven't tried the peroxide but read that's it a fine technique also - just have to soak for 30 minutes, so a bit longer.

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