Doctors claim oxycodone exacerbates pain but nothing else helps

Posted by Jenny @fairymystry, 4 days ago

Hello. I have reached out to the forum before on behalf of my best friend with chronic pain and I am back again with another query....
My best friend had yet another upper endoscopy today to attempt to find a cause for the constant and intense abdominal pain that she suffers. She has a long history of food allergies, gastroparesis & other gastro issues spanning most of her 49 years but, several years ago she began a cycle of getting pancreatitis repeatedly with 6-12 months in between. The abdominal pain has never gone away & is so intense that she can no longer work, especially since she had a nerve block a couple of years ago that she claims actually made it worse. She now relies heavily on the oxycodone & it doesn't take her pain completely away but she is able to function at least. It is the ONLY thing that seems to work for her and she hates it because of the side effects.
Today after the latest endoscopy, this doctor joined a series of docs that have suggested that the oxycodone she takes to relieve the pain is actually exacerbating the pain and that she should consider getting off of it. The doctor that renews her prescription for it monthly doesn't seem to see that as an issue & my best friend doesn't know what to do because of course she'd love to get away from the oxy but the pain is too intense without it and no one seems to have an alternative for her.
I guess I came here to ask if anyone else has heard that the opioid they take for pain may be making it worse & if there are non-opioid alternative that actually work for this type of pain.

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@fairymystry

Oh she is adamant that there must be a cause for the pain and is vigilant about finding it but she feels that the doctors aren't doing enough to find the cause of the issue. They do endoscopies but never find anything - that is why they claim it has to be the oxy.
One doc has told her that there is a possibility that this pain will never go away - having something to do with the recurring pancreatitis. I honestly think that may be the closest that she ever comes to an answer but she is determined to find a doctor to figure it out. Unfortunately it seems that no one in the medical field in our area shares her fervor to find the solution for her. It has been suggested that she look into palliative care & I personally feel that she should look at a pain management clinic but I believe she thinks that is giving up in a way.
Ideally she would like to be completely healed and able to return to work but right now she is walking with a walker due mostly to the pain.

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Bless her. It is so good that you are there for her. I will pray that she gets answers and relief from her pain.

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@sundancerdb78

PREJUDICE IS ONE THING! This is quite another! Don't know where it is coming from!
If you tell somebody you are taking Oxy they think you are "DRUGGED OUT!"
After my last TBI the doctor wanted to take me off of Oxy and put me on Hydrocodone!
After 3 weeks of recovery my Headaches continued, from Lyme disease! I went back on the Oxy and doing better!
The medical profession is no longer what they were and have become totally unreliable!
All they want to do is run more tests to get more $$$$$$!
Sundance aka RB

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I believe Hydrocodone is a stronger medication than oxy.

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@sundancerdb78

I was looking for a new local PCP. I went to him for a year and he new I was on Oxycodone. In the past he said he would take over my script from my other PCP out of town I had used for years.
When I finally decided to make a change to a local PCP I asked him to take over the script for Oxy he all of a sudden said NO!
Seems to be some new edict from the government or some entity to stop prescribing Oxy!
I have been on 3 a day for the last 6 years because of the headaches and fatigue I get from Lyme Disease!
I would not be alive because of the pain I suffered when I first came down with Lyme!
Sundance aka RB
PS. on the same visit he also told me he had talked to a couple Infectious Disease doctors and said Lyme Disease does not exist! NEEDLESS TO SAY I'M STILL LOOKING FOR A LOCAL PCP! I FIRED HIM!!

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I have been on oxy for 8 years for severe back pain from lumbar and cervical radiculopathy. I cannot take ibuprophen due to Stage 4 severe kidney disease.
I changed my PCP, who I really liked, to one closer to me. She knew my problems, but said she was not going to lose her license over prescribing oxy. I have never abused it and I am genetically resistant to addiction. But she didn't care. Needless to say, I went back to my original PCP.

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@kenc

I believe Hydrocodone is a stronger medication than oxy.

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There is no difference as they are the same mg. However, hydrocodone is more likely to cause constipation.

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She should see a psychiatrist to determine if her brain is causing the pain and not her abdomen. The pain doc may insist she do this anyway since she isn’t addicted (seeking more drugs at higher doses) but she is dependent instead due to her long term use of oxy. Considering she doesn’t have a real diagnosis for the pain a pain specialists may not prescribe her anything.

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I have had this argument for many years with doctors. I take paracetamol/codeine and tramadol as a rule, but when my back flares up oxycodone is the only thing that works. Listen to your body not some clown talking theory not practicality.

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i have chronic pain and was in a pain management program in pennsylania and took tramadol and oxy which worked great. Nothing else did. The drs had no problem. I saw them like clock work and they refilled my rx's with reg apts and blood work. Iv'e been Dx'd with CRPS & 100% disability due to pain & ptsd. Since moving to Ohio, no Dr will rx either drug and my pain is un-managed. Ohio has written into state law that these drugs cannot be rx'ed outside a hospital or nursing home within X # of days from a surgery. Drs are terrified of losing their licenses. I think this dr. has rocks in their head. I honestly feel that Drs do who do not know or understand pain (even if they are "pain mgt" drs) just blow off patients pain & concerns. They do NOT understand how pain sucks the soul out of us and denies us the ability to get through a day or night or the ability to work gainfully or around the house or sometimes even have meaningful thought or conversation. Sorry. Find a different Dr that really understands pain and your friend. This doc doesn't get it.

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I have neuropathy in my feet and legs, have had both hips replaced and suffer with degenerative arthritis in my back for years. I've been controlling the pain with Oxycodin in small doses for years and trying to avoid surgery to fuse my spine. Now the pain is so bad the medication isn't helping and my pain specialist wants to burn the nerves in my spine to stop the pain for a year. There's got to be a better way.

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My experience with oxygen has been good for controlling pain in the past. My doctor was only concerned about it being addictive and because of state laws, I had to sign a release and provide ID when picking up the medication. I still have to see him in person for a refill.

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