Can’t regulate body temperature.

I am having incredible night sweats. Wake up soaking wet then freezing to death. I start getting cold in the late afternoon. No change in temperature in house. I have RA and dermatomyositis. I am currently on methotrexate, IVIG infusions twice a month, Rinvoq, tramodol, synthroid, NP thyroid. Have been off of steroids for about 8 months after low dose usage for 11 years straight. Occasional high doses during flares. Constant sores in my nose and daily nose bleeds borderline anemic. I feel you pain I hope we can both get some relief soon

I stay freezing since my neuropathy has became worse. Total hysterectomy in 2019 onHRT hormones ( progesterone 250SR, estrogen and testosterone cream 12 meq twicea day). As my neuropathy has became worse my body does not regulate my body temperature. My temperature has always been 97.5 still the same but it can be 105 in Texas and I am wearing a cardigan sweater I constantly carry in my car.
Diagnosis severe axonal sensorimotor poly peripheral neuropathy, dysautonomia, small fiber neuropathy,
Cardiac autonomic neuropathy, asthma, sjogrens, lupus. Just an fyi motor neuropathy causes tremors. My seizures has been linked to my seizures.
Along with RA and Elenor’s danlos a connective disorder, spinal bifida. All my inflammatory markers elevated but test negative for everything which don’t make much sense. I have the lupus rash and ultrasound shows stage 3 rheumatoid arthritis nodules. The doctor tried to tell meI was seronegative RA but read up on RA you can only have the nodules if you are positive now he is mad at me telling me I am too complicated and he is dropping me as a patient. Welcome to RA doctor verses the RN not a good match.

My rheumatologist dropped me too. If they can’t figure it out in their tunnel vision they dismiss you in pain. I knew I had PMR, but since only my primary saw me during the attack and she ganpve me prednisone, the rheumatologist tried to wean me off prednisone too fast. He said sero negative arthritis. Because of him I had a major flare.
I test negative for rhemotoid arthritis. Honestly, I don’t think anyone really knows what I have, but I know this is all from the covid first 2 vaccines. I’ve been on prednisone low dose 7 mg for 3 years with ups and downs, can’t get lower than that.

I have sarcoidosis and have suffered from around-the-clock hot flashes, night sweats, episodes of freezing, lack of thermoregulation for going on 20 years. Ambient temperature and environment make no difference. I suffered serious sleep deprivation (to the point of suicidal thoughts) due to being constantly woken up by night sweats. I'm certain I have small fiber neuropathy (although the one biopsy I had five years ago was "borderline") as well as chronic inflammation, both of which affect my hypothalamus and autonomic functioning. Peri-menopause was suspected when this all first started (I was in my mid 40s ) so I tried every hormone therapy out there but nothing worked. Finally, a new OB/GYN nurse practitioner told me about Gabapentin. "It's been used for thermoregulation for at least 30 years," she said. No one had ever suggested this before, which was mind-boggling. Sure enough, 100mg in the morning and 200mg before bed (a tiny dose) keeps the sweating/freezing cycle mostly at bay with no side effects that I've noticed.

I was taking 100 mg a day for one week. I started seeing things that really weren’t there couldn’t make out certain objects for a while. I would think it was something other than it was. Extremely groggy and very forgetful. Definitely couldn’t function in normal life. I wish gabapentin would work for me.