What are your 3 worst symptoms?

Posted by gregorb @gregorb, May 14 7:23pm

Trying to determine the 3 worst symptoms we are dealing with as a group.

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@klehker

Body aches, sleep disruption, abdominal distress. (Hard to pick just 3!)

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Fatigue. No appetite. Taste problems. Salty lips. Phelm back of throat. Feel better in evening . Bowel problems. Sleep problems at night.Four weeks after the latest covid 2025. Does anyone know how long it takes to recover

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@sweetwater9

jrg, so sorry you have had to try and tolerate this for so long. Thanks for sharing all the information. I will keep the Metoprolol in mind. Has your doctor tested you for histamine intolerance or Mast Cell activation syndrome?

One of my practitioners has LC too. She uses a nicotine patch. I think she says it helps with the racing heart. It is experimental. Some things to think about.

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Thank you for the suggestion(s). I had a follow-up appt at my COVID Clinic this week. We discussed all that you mentioned. Got results on my TRYPTASE lab. We’ll see where it leads.

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@jrg200911

Thank you for the suggestion(s). I had a follow-up appt at my COVID Clinic this week. We discussed all that you mentioned. Got results on my TRYPTASE lab. We’ll see where it leads.

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jrg,
The test part is partially cut off, but I believe it said your Tryptase results were high. So this is kind of exciting as maybe it will be helpful. I will be starting a mast cell stabilizer as soon as prescription is ready. Anti-histamines help some for a while. Unfortunately, I had a Tryptase test that was normal, but then I had been on a double dose of antihistamines for 10 days before which can affect the test. I was the one to bring up histamine problems to my practitioner. I am surprised that they all are not immediately checking out, with every LC patient, histamine problems.

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@sweetwater9

jrg,
The test part is partially cut off, but I believe it said your Tryptase results were high. So this is kind of exciting as maybe it will be helpful. I will be starting a mast cell stabilizer as soon as prescription is ready. Anti-histamines help some for a while. Unfortunately, I had a Tryptase test that was normal, but then I had been on a double dose of antihistamines for 10 days before which can affect the test. I was the one to bring up histamine problems to my practitioner. I am surprised that they all are not immediately checking out, with every LC patient, histamine problems.

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@sweetwater9
(If you click on the test image, it should open up for you to see it all. But yes, TRYPTASE is high.)

I got a call this morning about scheduling an appointment with an allergist. We’ll see what that uncovers.

Everyone is still learning, so it never hurts to bring up things that are milling about with our practitioners. It will take us all to get this all figured out.

Best to you on this common journey we’re on.

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