72 hours out from robotic prostate surgery ..

Sorry to hear of your pain and consequences, but...you are only 72-hours from surgery. You have a long way to go. I do know from several friends and from comments here - plus physician input - that the younger you are, the less difficult the post-surgical process is. The men I know who had the surgery in their 50's, did bounce back pretty fast, and were back to work with a week.
I am 70 years old. I stayed two nights in the hospital. The first 10 days post-op were pretty difficult. It was hard to get myself up from a prone position in bed or the couch, and down/up off the toilet. The symptoms do change though...some completely disappear, but are replaced by others. Right now at 8 weeks post-op, my biggest problem is a deep, aching, painful perineum. It feels like a rode a bike for over 100 miles on a racing bike saddle seat. I am living on Tylenol and Motrin (alternate them). The incontinence is exasperating. I am doing Kegel's, but I don't know if I am doing enough, too many, or just right. Either way, they are not working thus far 6-7 weeks after the catheter was removed. But...my doctor and the literature say, that you can expect to be incontinent for 2-3 months "minimum." I started inserting pads inside my diapers because I was going through 6-8 diapers per day. My only respite is that I can sleep at night without peeing. It is all about "gravity." As soon as I stand up from a chair, the couch, or getting out of my car, it is an absolute flood. I use Kegel's to get to the bathroom fast, but when I am out on errands, etc., it just flows uncontrollably. So...long story short: be patient if you can. You have a longer more frustrating road ahead of you than any of us were told would happen, or would want to consider. I am just hoping that one day I'll realize that I just spent 1-2 hours out on errands, and I still have a dry diaper and pad. Continence is everything...something we all take for granted, until we lose it. Good Luck.

I had my prostate remove more than a year ago a little pain and discomfort no problem releasing my urine at all only ED problems but dealing with it since I am married to a wonderful woman that understands the situation

I had my RP 1 1/2 years ago. Prior to my surgery I did Kegels religiously for a month, in addition to my usual cardio and strength workouts. Preparing the body to be strong as possible. I had very little body fat in my abdominal area, which the surgeon said will make the procedure easier to perform. I’m happy to say the surgery went well and I had ZERO incontinence issues. Best wishes as you prepare for your surgery. 🙏🤞

It can take up to 24 months to have a functional erection if you have nerve sparring RP. Use a vacuum pump, see a pelvic floor PT and keep at it. Worse case try Trimix, it's a miracle.

Am 19 month PC survivor. A 4+3, a 3+4 and a 4+4. Your sex life is hardly over but it will be different.

D

I have decided to have RP, surgery is set for August 13. 2 days before my birthday. The doctor will be using a single port so I hope I won’t have abdominal pain as much. I have read the literature but I’m still not looking forward to the day I have the RP. My Gleason is 4+3, the biopsy showed 15 out of 30 cores were positive. Will be doing nerve sparing. The cancer is very close to the nerves on the left side but the Petscan indicates it’s still local and hasn’t spread yet. As far as work goes, he said I could return to work in a few days with restrictions but I don’t want to deal with a catheter at work. I had a catheter in 2021 after a bout with 8 and 9 mm kidney stones so I’m somewhat familiar with that. Just didn’t have the bag to deal with. Hoping for the best.

It was also a 4+3, but they found that after surgery. Were they talking about you going on ADT for six months? Did you get a decipher score? With you having 50% of 30 cores positive means you have a lot of cancer in your prostate, ADT really may make a big difference in your future. I can’t tell you how many times people have surgery and it comes back quickly because they didn’t have ADT. The NCCN recommends six months of ADT if you are a 4+3. Not sure where your doctors are going on this, Just wanted to make you aware of it.

I worked for two weeks with a catheter and a bag strapped on my leg, starting four days after surgery. I was going from one office to another working on computer issues, ran a computer consulting business. I never had a problem with the catheter or the bag while I was working, It was actually sort of convenient. None of my clients even knew I had surgery.

Wish you the best of luck with surgery.

ADT has not been mentioned but I will certainly be asking the next time I see my urologist which will be 2 weeks before surgery. My PSA was 4.08, never thought I was this far along

glad you are post-op. Listen. I'm a doc. I had to 3.5 mo's ago. I'm ok now but what you are experiencing is EXACTLY what happened to me AND yes it does happen. Despite what uro says some folks have a lot of pain. I felt like a burning baseball was pressing on my groin. I like all of you did plenty of research( also 77 fyi) . NB: the range of experience is WIDE( I was also told it's not nl. LOL) but please take heart it will resolve in time. For some days . Others months. BEST dnm md

oops I had complete RP robotically.