72 hours out from robotic prostate surgery ..

Posted by sicescu2 @sicescu2, Jun 9 11:01am

Age 77. Very fit, active. Can barely walk from pain. Weakness. Trouble standing up and sitting down from couch. Taking oxycodine acetaminophen 5-325. 6 hour interval. No appetite. Hospital called my wife told her that it isn’t normal? Opinions? Any experiences welcome. 13th catheter removal.

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@rlpostrp

Sorry to hear of your pain and consequences, but...you are only 72-hours from surgery. You have a long way to go. I do know from several friends and from comments here - plus physician input - that the younger you are, the less difficult the post-surgical process is. The men I know who had the surgery in their 50's, did bounce back pretty fast, and were back to work with a week.
I am 70 years old. I stayed two nights in the hospital. The first 10 days post-op were pretty difficult. It was hard to get myself up from a prone position in bed or the couch, and down/up off the toilet. The symptoms do change though...some completely disappear, but are replaced by others. Right now at 8 weeks post-op, my biggest problem is a deep, aching, painful perineum. It feels like a rode a bike for over 100 miles on a racing bike saddle seat. I am living on Tylenol and Motrin (alternate them). The incontinence is exasperating. I am doing Kegel's, but I don't know if I am doing enough, too many, or just right. Either way, they are not working thus far 6-7 weeks after the catheter was removed. But...my doctor and the literature say, that you can expect to be incontinent for 2-3 months "minimum." I started inserting pads inside my diapers because I was going through 6-8 diapers per day. My only respite is that I can sleep at night without peeing. It is all about "gravity." As soon as I stand up from a chair, the couch, or getting out of my car, it is an absolute flood. I use Kegel's to get to the bathroom fast, but when I am out on errands, etc., it just flows uncontrollably. So...long story short: be patient if you can. You have a longer more frustrating road ahead of you than any of us were told would happen, or would want to consider. I am just hoping that one day I'll realize that I just spent 1-2 hours out on errands, and I still have a dry diaper and pad. Continence is everything...something we all take for granted, until we lose it. Good Luck.

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You just had major surgery and some of this is expected. I imagine you feel somewhat gut shot where a robot arm went in under you naval. If you run a fever call the doctor. Guessing you cath will come out roughly a week after the surgery and you can see the doctor then. I stated overnight and walked the halls and nurse station when I couldn't sleep. Stood impatiently waiting for staff to walk me out of the hospital. I was 68 and in very good physical shape when I had the surgery. Helped with blood clots and such. I slammed water post surgery and could imagine life with a cath with beer at sporting event lol. Best wishes on your recovery.

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As shown from these responses, results from a RP very widely. I am 72 hours out of mine. I am 70 years old and pretty fit. It was extremely painful coming out of anesthesia, but pretty well controlled after that. had a little bloating, but not too long. Today, I'm not in too much pain except sitting down and getting up. moving in bed is also painful. but i can walk and sit without pain. my penile urethra is painfully sore. My perineum is also pretty sensitive. The catheter is a pain in the ass, but you learn how to manage it over a couple of days. I put my catheter bag in a tote bag so it's less conspicuous if I go outdoors. commando gym shorts are my standard attire. My recliner is where i spend most of my sitting time. It's pretty comfortable and keeps you a little more stretched out. I'm cautiously optimistic at at this point. a bit more painful and messy than i thought. I'm a little worried about continence once the catheter comes out, but I'll deal with that when I have to. good luck to you!

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@mlabus3

As shown from these responses, results from a RP very widely. I am 72 hours out of mine. I am 70 years old and pretty fit. It was extremely painful coming out of anesthesia, but pretty well controlled after that. had a little bloating, but not too long. Today, I'm not in too much pain except sitting down and getting up. moving in bed is also painful. but i can walk and sit without pain. my penile urethra is painfully sore. My perineum is also pretty sensitive. The catheter is a pain in the ass, but you learn how to manage it over a couple of days. I put my catheter bag in a tote bag so it's less conspicuous if I go outdoors. commando gym shorts are my standard attire. My recliner is where i spend most of my sitting time. It's pretty comfortable and keeps you a little more stretched out. I'm cautiously optimistic at at this point. a bit more painful and messy than i thought. I'm a little worried about continence once the catheter comes out, but I'll deal with that when I have to. good luck to you!

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Keep the meds up, that's my biggest thing for me. The catheter is horrible. I had one in me for 5 months prior to my surgery. Awful. Get better soon! I think your continence will be fine, keep doing the kegals! Best of luck brother!

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@surftohealth88

Jeff, I could not find that new guidance about ADT and 4+7 on NCCN site - would you mind attaching a link here ?
Thanks so much in advance 🙂

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From NCCN Guidelines Version 1.2025

For unfavorable intermediate-risk (4+3) prostate cancer treated with RT, short-term ADT (ST-ADT) (4- 6 months is recommended. Concurrent/adjuvant ADT is preferred over neoadjuvant ADT in this setting.

And further info from NCCN
In summary, ADT is a recommended treatment option for unfavorable intermediate-risk Gleason 7 prostate cancer, usually in combination with radiation therapy. However, treatment decisions should always be made through shared decision-making with a healthcare provider, taking into account individual patient factors and the specifics of the cancer.

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2 weeks have passed and I am feeling well. No bladder leakage and beginning to exercise. Catheter was removed last Friday. Just still waiting for my pathology report.

Thanks for all the support. I read here, early on, that a center of excellence and a top surgeon would provide a better outcome. My wife found the Head of Urology that does 100’s of these procedures a year. I am so happy I had both this board and her support in a journey none of us really want to be on.

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Yeayyy and thanks for letting us know that you are doing well : ) . I wanted to ask you yesterday again of " how are you doing" but did not want to sound pushy. So glad to hear that you have no incontinence and feel so much better !

Wishing you complete and fast recovery and very good pathology report :).

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@jeffmarc

From NCCN Guidelines Version 1.2025

For unfavorable intermediate-risk (4+3) prostate cancer treated with RT, short-term ADT (ST-ADT) (4- 6 months is recommended. Concurrent/adjuvant ADT is preferred over neoadjuvant ADT in this setting.

And further info from NCCN
In summary, ADT is a recommended treatment option for unfavorable intermediate-risk Gleason 7 prostate cancer, usually in combination with radiation therapy. However, treatment decisions should always be made through shared decision-making with a healthcare provider, taking into account individual patient factors and the specifics of the cancer.

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Thanks so much Jeff 🙂
It seems that I misunderstood your sentence " I can’t tell you how many times people have surgery and it comes back quickly because they didn’t have ADT." Since you mentioned surgery in that sentence I thought that there is perhaps a new recommendation for people who are undergoing surgery (RP) and that they need to be on ADT also if they have 4+3.
Thanks for clarifying < 3

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NCCN recommendations seem to change overtime. The 2025 recommendations are not the same as earlier ones I’ve known of that recommended ADT.

I was just watching Dr. Kwon today on YouTube discussing once your prostate has been removed cancer is coming back from seeds that were planted at the time of your surgery or even prior to surgery. He says they are trying to figure out where the seeds are taking root and coming back in your body to treat them there I know ADT will delay reoccurrence….but

NCCN 2025
ADT is not automatically recommended for all Gleason 4+3 prostate cancers after radical prostatectomy. The decision depends on the complete risk assessment and whether there are indicators of persistent or recurring disease after surgery. If additional risk factors are present, or if the cancer recurs after surgery, adjuvant or salvage ADT may be considered as part of a multi-modal approach. Always consult with your healthcare team to discuss the most appropriate treatment plan for your specific situation.

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I had great difficulty having my prostate removed robotically. The surgeon sure refused to deny it but I know he cut the pee tube too short when reconnecting it. I had pain so extreme that I could barely sit for months. Of course, he thought everything went smoothly. My penis shrank up as the tube was pulling itself back into place. Pretty graphic I know, but true. I had pain in the stomach, belly button, and where they removed the prostate. The catheter was very irritating and uncomfortable and even though it was painful, I could manage that part better. It's been 5 years since my operation. My numbers are 0. Praise God I still have some incontinence but if I pay close attention to how much caffeine I drink, I can minimize it. In hindsight, I'd do it again. The surgeon told me that mine was slow growing but added that at My age, if I didn't get it done, it would take me out. I was 56 years old at the time.

My recommendation to anyone getting this done is to sure you get a seasoned surgeon. Do your home work on the doctors experience and success rate. God bless

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@greff

I had great difficulty having my prostate removed robotically. The surgeon sure refused to deny it but I know he cut the pee tube too short when reconnecting it. I had pain so extreme that I could barely sit for months. Of course, he thought everything went smoothly. My penis shrank up as the tube was pulling itself back into place. Pretty graphic I know, but true. I had pain in the stomach, belly button, and where they removed the prostate. The catheter was very irritating and uncomfortable and even though it was painful, I could manage that part better. It's been 5 years since my operation. My numbers are 0. Praise God I still have some incontinence but if I pay close attention to how much caffeine I drink, I can minimize it. In hindsight, I'd do it again. The surgeon told me that mine was slow growing but added that at My age, if I didn't get it done, it would take me out. I was 56 years old at the time.

My recommendation to anyone getting this done is to sure you get a seasoned surgeon. Do your home work on the doctors experience and success rate. God bless

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Greff , in the end you have a lot to be thankful for . Your at 0 after 5 years . After my surgery I has a low but slowly up moving PSA . SO at 0.14 I took the RO's advise and got 22 sessions of External Beam radiation . This was 3 years after my surgery and slow raise in my PSA numbers . Well now im at 0.040 to about 0.033 . It hovers in there now . My Urologist says I likely have a small bit f healthy prostate cells still in pelvic pushing out a very low PSA number . I was discharged from Victoria General Hospital Cancer program and just told to report to my Urologist now . I dotn know how I feel about that in that am I cured or just too much of a bother at thee low numbers , or ? But you Sir , has a very good record of no PSA for a very long time. I was 57 when diagnosed too . Steep family history too . Gleason 3+4 and PSA of 4.1 when operated on . Gos Bless Sir . Im sure you will do just fine in the long run ! James on Vancouver Island .

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