Covid booster with autoimmune disease AND bronchiectasis
I have an autoimmune skin condition that causes misery and lack of sleep, but isn't deadly. It has been flaring a few months. I responded to Xolair for a couple months, but it has lost effectiveness. My dose was just increased to bi-weekly.
I have mild bronchiectasis and have been stable for about 2 years.
If you have autoimmune disease and bronchiectasis, what is your doc's recommendation for boosters? My immunologist told me no booster until this settles because it's linked to flares, but she isn't very thorough and I doubt she remembered my bronchiectasis. I emailed her when Xolair quit working and again included a comment that I'd like to get booster due to bronchiectasis and she increased Xolair frequency, but ignored booster/bronchiectasis comment. My primary thinks Covid is a bigger risk and I should get booster soon. My pulmonologist saw me while I was responding to Xolair and we thought I could get booster soon. I'm feeling torn.
Are those of you with autoimmune issues getting your boosters? Did they cause flares to worsen?
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
I have run a fever with Moderna and thought of not getting another booster until a friend suggested that she had no problem with Novavax. I tried it and felt fine after. So, if you can find it try it.
My understanding is that it’s MAC for sure, shown from a Bronchoscopy The original chest ct scan showed Bronchiectasis. I pray that the meds I’m on for a year do their job!
I have bronchiectasis and have always gotten the Moderna vaccine. I planned a day afterwards to be sick, and this time and last time I had a headache for about an hour. I decided to get up and felt fine after that. I believe in vaccines although some people don't. I will do whatever I believe will keep me as healthy as possible. I am almost 84 years old and had covid last summer. I think I got it because they were saying to wait until the fall to get the new formatted vaccine. So it was past 6 months when I contracted covid.
I'm sorry about the MAC. Let us know how the treatment goes for you.
Thank you!!
I’m still trying to figure out how to best take the three meds I’m on three times a week. The Dr has advised I take the Azithromycin with the Rifampin at breakfast and the Ethambutol with lunch. One day it seems to work the next time it makes me nauseous. Although I did change my breakfast ingredients…included a probiotic yogurt which I thought would help. If anyone has any advice, thank you.
As an illustration of how we can differ physiologically, I have both MAC and Bronchiectasis and had a terrible reaction to the Pfizer vaccine that led to a visit to the ER after I developed premature atrial contractions/tachyarrhythmia and exhaustion. The Moderna version (I have had several boosters of the Moderna) has given me a slight fever and an ache-y arm for a couple of days.
I had problems working out when also. I was swapped from ethambutol to clofazimine because of side effects. Az, Rif, I take on an empty stomach at 6am before breakfast then wait 2 hours eat breakfast and take clofazimine with the food. I will say I found what I ate could affect any reaction. A bowl of bran flakes with banana and milk seemed to work for me. Also though now I’m into my 5th month so body adjusting not so much stomach pain. Then I take a good probiotic supplement around 4pm. I eat yoghurt after dinner either a spoon of Manuka honey mixed in. This seems to work for me but again we are all different! Good luck in finding what works for you!
Thank you very much! Worth a try!
Another suggestion I read from someone else was to include brown rice with protein and veg in the meal night before meds, apparently good and I started doing that and must say it did help me also.