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My Parkinson's life is so confusing - this is not easy.

Parkinson's Disease | Last Active: 8 hours ago | Replies (55)
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@eojeda1

I think that finding the right regimen helps. My husband too has PD. Since his diagnosis in Oct 2024, it has taken until now to find the right regimen of medications that work. My husband takes Ropinirole for PD and RLS, and he takes low dose Tramadol for pain. He backs this up with Ibuprofen and Tylenol when needed. He has improved with this regimen. All PD patients are different, and sometimes having to find the right thing that works for you is what is needed. Believe me, it has been frustrating for me and my husband, but I refused to give up and watch my husband suffer through it. I did the research and advocated for the changes with his doctors. Perhaps this is something that might work for you, but don't just accept what is as the last resort. See the changes, makes the changes and make it happen!

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Replies to "I think that finding the right regimen helps. My husband too has PD. Since his diagnosis..."
sillyblone | @sillyblone | Jun 10 1:47pm

Amen!!

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ethel2017 | @ethel2017 | 1 day ago

Your husband is so lucky to have you advocating for him. I too have Parkinsons and I am an advocate for Parkinsons Voice Project, a non-profit, out of Richardson, Texas. May I offer some advice about regaining and retaining his ability to speak and swallow. It is never too early to start SPEAK OUT! therapy. This is a program offered to people with PD for no charge. Please go to ParkinsonVoiceProject.org and find a Speech Language Pathologist trained in SPEAK OUT! Most of them offer virtual or in person treatment. A large percentage of people with PD will have speech or swallowing issues. If he is not having any problems he still needs to go through this program. Remember, there is no charge and no bills to your insurance. PVP is the only organization in the world to offer this program. It is proven to be affective. Listen to some testimonials on their website and see how they help people. .

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