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Diagnosed with sarcoma? Let's share
Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.
As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.
Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?
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P.s Dr Swartzs team where amazing with my after care I had to have a wound vac changed Weekly I chose his team the do it at the clinic and not home care that was a great decision I had my three mouth mri last week still cancer free
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2 ReactionsThank you for the reply and the prayers, I will also prayer for you. I have hope in all this and leaning on God and my wife helps so much. Blessing to you, the peace of Christ Jesus upon you.
'Now may the God of hope fill you with all joy and peace in believing, so that you will abound in hope by the power of the Holy Spirit. '
Romans 15:13
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1 ReactionMy sarcoma was first identified as a Myopericytoma, i have them in my right quadrant. some 30yr ago i had a bump on my right ankle that had pain when touched removed and the pathology stated it was a hemangioma, probably wrong as then the 7 tumors showed up in MRIs, all but the one was malignant.
I have been told they were probably there since birth. I never developed a right calf and was told my right led vascular was not fully developed, the three branches were complete. One went malignant and it was tried to save my right leg but it lost the battle. Doing ok 20 months on the prosthetic above the knee.
Recently another showed up at the base of the penis, operation went ok no infection but there were cells in the margin. Next is to have a consult with radiation, which on the right leg just made it worse, as well as cryoablation. I do have pictures of the tumor coming out of my skin. My Oncologist has not recommended any chemo. I am 66 and still working a desk job. I am still living life and hope this new occurrence is the last. the latest pathology describes it is a spindle to round cell neoplasm. When first and only gene study done it was part Brest cancer and part Prostate cancer markers.