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Diagnosed with sarcoma? Let's share

Posted by Colleen Young, Connect Director @colleenyoung, Jun 21, 2017

Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.

As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.

Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?

Interested in more discussions like this? Go to the Sarcoma Support Group.

ctflyr | @ctflyr | 3 hours ago
In reply to @suzyqqq "My sister was just diagnosed with "soft tissue sarcoma" and I would be grateful if I..." + (show)
@suzyqqq

My sister was just diagnosed with "soft tissue sarcoma" and I would be grateful if I can get any information on how this cancer is treated and benefits from treatment and is this cancer a non curable cancer. Also can you tell me what treatments are provided for this type of cancer since doctors told my sister there isn't any kind of treatments for this cancer. Our family is very concerned for our sister and hope and pray she will be able to get treatment for her her type of cancer. Thank you

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Hello.....it's best to know what type of sarcoma your Sister has
before attempting any informational research. There are a large number of different types of sarcoma and each have different treatment options. Without knowing more details of your Sister's sarcoma it would be a mistake to take a statement like "no treatments are available" as gospel. There are treatments available depending on a number of factors. If possible, find out some more details of your Sister's sarcoma before you dive into researching "soft tissue sarcoma". Because of the amount of information available from a wide variety of sources, it can quickly become overwhelming. Your journey with your Sister, and helping by gathering information and knowledge of her illness, will be an important part of her cancer care. It seems overwhelming, but knowledge is power. Wishing you and your Family well during this challenging, life altering time. ❤️

REPLY
jeshaw6801 | @jeshaw6801 | 1 hour ago

Run to the closest Sarcoma center to get it evaluated by a sarcoma doctor.
The first step is a good diagnosis
The type and location is critical to finding a plan forward.
The absolute best solution is surgery to remove the cancer but that is complicated by location.

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