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Diagnosed with sarcoma? Let's share
Because sarcomas are rare, I would like to start a conversation to help connect people living with sarcoma or caring for someone with sarcoma.
As you know, sarcoma is the general term for a broad group of cancers that begin in the bones and in the connective or soft tissues (soft tissue sarcoma). There are many different types and sub-types of sarcomas, for example: angiosarcoma, chondrosarcoma, Ewing’s sarcoma, fibrosarcoma, gastrointestinal stromal tumor (GIST), Kaposi's sarcoma, leiomyosarcoma, liposarcoma, malignant peripheral nerve sheath tumor, osteosarcoma, pleomorphic sarcoma, rhabdomyosarcoma, synovial sarcoma and more.
Let's get to know one another. Why not start by introducing yourself? What type of sarcoma have you been diagnosed with?
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HugInterested in more discussions like this? Go to the Sarcoma Support Group.
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Give you call doctors warts, you won't regret it.He's the best Doctor I've ever had.He saved my life
I just completed 25 Proton radiation treatments at Mayo Phoenix - very little adverse affects mine tumor is in my calf the size of a Soft Ball - the treatment themselves is painless and takes any minutes - the side effects for me were some fatigue usually about 1 day a week I felt like It just wanted to nap - during the treatments no adverse effects to my skin - but I am on week 2 after treatment and I have a mild sunburn which is am treating with Aloe Vera - I used a radiation burn cream all during treatments - the saying is you might be done with Radiation but it is not done with you so expect some issue after completion - The calf feels like an internal sunburn which I find ice helps - We have a pool and the temp is currently 70 degrees and standing in the cold water really helps
The care at MAYO is best of the best - you should check in with them there are places available to stay that are very low cost right at the hospital - the difference with MAYO is that I have a full cancer Board - A surgeon, radiologist, oncologist, plastic surgeon and a Physical therapist they consult constantly on my case to determine best treatment plan for my type of cancer no chemo was recommended as studies show it is not effective where Banner Health immediately told me to start Chemo
Hope this helps and best to you and your son
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1 ReactionI was diagnosed with dermatofibrosarcoma protuberans that was the final pathology report from Jennifer b gordetsky at the anatomic pathology laboratories
Thank you! I will take this information and utilize it if needed. I appreciate your openness.
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1 ReactionJust to clear up my post several. Doctors at skyline said I'd bleed out because I'm on blood thinners.And the tumor was attached to my artery with blood vessels
Anyone out there being treated with doxorubicin and Tribectedin for chemo for their LMS. I start next Thursday. I am wondering what food will work and what food to stay away from.
I am also looking for some success stories.