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My beginning was a visit to the ER for heart palpitations which turned out to be nothing according to the cardiologist (possibly a symptom of ET?). It was there I was given a CBC and it showed the high platelets. For some reason my doctors have neglected to give me a CBC over the years as my last one was in 2015. I guess I didn’t know people got them along with other annual bloodwork or I would have questioned them about why the test wasn’t ordered.
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Replies to "My beginning was a visit to the ER for heart palpitations which turned out to be..."
I had a similar experience regarding CBC testing. I wasn't routinely tested until I lost 20 lbs in 3 months. Looking back in my medical records on my portal I discovered that I had a CBC done in 2022 when I was seen in the ER following a fall. At that time my platelets were somewhat elevated, but no follow-up was done. When I was tested in April 2025 before starting HU my platelets were over 1.2 million. Glad I didn't stroke out or suffer a heart attack. Now my friends and family of a similar age (I'm 72) are requesting CBCs at their regular exams.
My platelets were high in 2015 and I was basically dismissed by hem/onc I saw at the time. Was in the 600’s. I am pretty angry that no follow up was ever done. My current hem/onc was confused by this too.
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That’s so interesting you weren’t getting a CBC draw in all that time. I had always gotten them and my platelets were always normal. Something caused the JAK2 mutation to kick off for me. They are looking for underlying conditions to make sure nothing else is going on in my body.
Lynda