Pancreatic Cancer Group: Introduce yourself and connect with others

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

@valerina30

So they just took the tumor out? Did it turn out to be cancer? Did you have pain prior to it getting removed? I don’t know what to do or who to see

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There were no symptoms and we discovered the tumour by chance. No pain, no discomfort, no digestive problems. We did not know any surgeons or oncologists; and we Googled, called up doctors we knew etc. You can do this - be calm; no time to be frightened; move forward systematically; ask questions of all your doctors.

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@valerina30

Yes I live in Absecon NJ. Really wanted to go to penn but they didn't take my insurance.

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If the neoplasm is diagnosed as malignant, cancers of the pancreas need to be treated at a high volume pancreas program such as those found at a National Cancer Institute Center of Excellence or a National Pancreas Foundation recommended comprehensive cancer center using a multidisplinary team approach. This is not the type of cancer to be treated at a community hospital or medical center. It requires a GI oncologist whose specialty is cancers of the pancreas.

In Camden is Cooper Medical,Center which is affiliated with MD Anderson. The Cancer Institute of NJ/Rutgers Medical School is the only NCI designated Center of Excellence and has a pancreas program. In Philadelphia, Fox Chase Cancer Institute in NE Philadelphia is an NCI Center of Excellence with a very good pancreas program. Thomas Jefferson University Medical Center in Philadelphia is a NPF recommended center with a noted pancreas program.

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@delores508

I have a precancerous pancreatic cyst discovered incidentally when screening for another complaint. I have undergone two Endoscopic Ultrasounds, but due to my anatomical abnormality, no biopsy was performed. ( I think that a prior hiatal surgery rearranged my abdomen) Because of my advanced age, I am not a candidate for the Whipple surgery. Thus, I am currently in a surveillance situation having scans every six months. The size of the cyst is a critical concern; however, the location of the cyst preclude removal of the cyst without the Whipple procedure. What other options do I have? Anyone with a similar experience?

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I'm wondering about your age precluding your not being able to have the Whipple. I had my Whipple at 83 years old; I'm 85 now and still hanging in there. Perhaps another opinion if your age is similar to mine. Courage, Carrie

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@carrie40

I'm wondering about your age precluding your not being able to have the Whipple. I had my Whipple at 83 years old; I'm 85 now and still hanging in there. Perhaps another opinion if your age is similar to mine. Courage, Carrie

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Thank you. I am 84 and have been told by two different doctors that I am not candidate for the Whipple surgery. May I ask where you had surgery and what doctor performed the procedure?

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@delores508

Thank you. I am 84 and have been told by two different doctors that I am not candidate for the Whipple surgery. May I ask where you had surgery and what doctor performed the procedure?

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Speaking of Whipple and age, a surgeon will tell you it is not age that is the deciding factor but the physical assessment of the patient. The oldest patient to have the Whipple done was 103 and it was done at Johns Hopkins Hospital in Baltimore by the noted Whipple surgeon John Cameron MD now retired. I know of another patient that was in their early 90’s operated on by surgeon Flavio Rocca in Portland, Oregon and again the decision was taken to perform the Whipple based on the physical condition of the patient-not the age. Both of these accounts were by personal communication with the surgeons mentioned.

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Here is the website got product manufacturer - https://shuddhi.com/, and clinics - https://clinics.shuddhi.com/

This, in my opinion, is not applicable to front line pancreatic cancer care.

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@stageivsurvivor

Speaking of Whipple and age, a surgeon will tell you it is not age that is the deciding factor but the physical assessment of the patient. The oldest patient to have the Whipple done was 103 and it was done at Johns Hopkins Hospital in Baltimore by the noted Whipple surgeon John Cameron MD now retired. I know of another patient that was in their early 90’s operated on by surgeon Flavio Rocca in Portland, Oregon and again the decision was taken to perform the Whipple based on the physical condition of the patient-not the age. Both of these accounts were by personal communication with the surgeons mentioned.

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Thank you for your words of hope and encouragement.

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@stageivsurvivor

Speaking of Whipple and age, a surgeon will tell you it is not age that is the deciding factor but the physical assessment of the patient. The oldest patient to have the Whipple done was 103 and it was done at Johns Hopkins Hospital in Baltimore by the noted Whipple surgeon John Cameron MD now retired. I know of another patient that was in their early 90’s operated on by surgeon Flavio Rocca in Portland, Oregon and again the decision was taken to perform the Whipple based on the physical condition of the patient-not the age. Both of these accounts were by personal communication with the surgeons mentioned.

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Those are incredible statistics! My question would be how did this patients fare after the surgery?

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@joiedevivre

There were no symptoms and we discovered the tumour by chance. No pain, no discomfort, no digestive problems. We did not know any surgeons or oncologists; and we Googled, called up doctors we knew etc. You can do this - be calm; no time to be frightened; move forward systematically; ask questions of all your doctors.

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Same for me. Luckily, PNET was found by chance . I was referred to a fantastic surgeon. Had the horrible Whipple in 2019. Stay calm and do your due diligence .

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Hi @valerina30, what a scary time for you. Did you check out the MD Anderson program at Cooper Health in Camden?
https://www.cooperhealth.org/services/md-anderson-cancer-center-cooper

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