Diagnosed with sarcoma? Let's share

Good morning
Can you give me more details?
When did the disease start and what treatment did you receive?
For me, did it start after the third dose of the Pfizer vaccine for covid 19, by chance or not?
I talked to an oncologist surgeon in Italy but I want to learn more about this disease.

Not clear when it started. It took several months before the medical profession settled on the finding that the large lump I had was sarcoma cancer. The treatment was radiation and surgery. They since have discovered a very tiny tumor, which will be treated by chemo at first, then perhaps radiation, then perhaps surgery and immunotherapy.

@ninaricci, welcome. Please see this related discussion:

- Malignant Peripheral Nerve Sheath Tumor https://connect.mayoclinic.org/discussion/malignant-peripheral-nerve-sheath-tumor/

I discovered the disease in 2023 after 1 year in which I went to several doctors and they did not know what I had. In my case, it manifested itself in the form of spots on the lower limbs, more precisely on the fingers and soles of the feet. After biopsy and immunohistochemistry, the diagnosis of Kaposi's sarcoma was made. That year I had radiotherapy on one leg and the following year on the other. After radiotherapy, the skin burned and opened, fell off and now it looks good. Radiotherapy weakens the immune system even more, the skin becomes dead and does not recover and the dermatologist forbade me from having radiotherapy anymore. I go for a check-up in Italy every 6 months and as a medicine I take something that contains vitamin D.

Hi everyone, I was diagnosed with a GIST 7 days ago, and I am scheduled for surgery on 6/16. I feel blessed because of the way this all played out. I went in for a routine endoscopy about some swallowing issues, and my GI doctor discovered the tumor. After second endoscopy with ultrasound and fine needle aspiration I was told that it was a GIST, approximately 3.5cm.

The other reason I am feeling blessed is the location, it is in the wall of the fundus, in the muscle tissue, and no other tumors were found in subsequent CT scans. My oncologist surgeon thinks this will be a curative surgery, barring any unforeseen issues.

I know not everyone has such prognosis, so my prayers are with everyone on this group, for comfort, peace, and healing.

I am now in the waiting mode; I will check in when I can and will give an update after surgery. I also know the doctor will be using the Da Vinci Robot for the surgery.

I would like to thank Mayo Clinic, and Ms. Young for this support group.

In Christ, David L

To all who are diagnosed and on the treatment road...please read...
https://www.curetoday.com/view/you-are-not-a-statistic-facing-cancer-with-hope-not-numbers
BEST WISHES AND HUGS!!

Please do check in when you can. I was also diagnosed with a GIST in the distal esophagus. My oncologist has put me on Gleevec and wants to see if my tumor, currently also 3.5 cm, improves. I'm scheduled for surgery in the fall. I look forward to hearing your reports and pray for a speedy and uneventful recovery. I'll add you to my prayers.

My father was diagnosed with kaposi sarcoma in his foot

The right doctor that is both caring and technical competent are difficult to locate. Obviously you are successful.

Dr herbert Swartz at the Vanderbilt clinic removed a 14cm fibroblastic sarcoma tumor that was attached to the artery in my upper inner thigh with blood vessels I am cancer free at the time of this post I met with multiple Dr at skyline hospital they referred me to Vanderbilt the trauma sergen at skyline said she didn't feel comfortable trying to remove it she said I would be laying in a pool of my own blood if your looking for a oncologist he's the Dr you want to call