long covid shortness of breath, more in depth testing

The frustration is that you go t another doctor or specialist who does their tests and usually doesn’t find anything, this is good but you still want to know more and that they can’t do. I sincerely hope that you get some help with your problem because it’s very hard to live with SOB, they might give you a inhaler to help you breathe better, good wishes for you.

You can walk up a flight of stairs?!

Jealous...

Thank you, frouke, yes, I may be prescribed an inhaler. They have not helped in the past. But will try again if I cannot get a better diagnostic test. I hope we all find good answers.

Siggy,
Have you asked your doctor about Histamine Intolerance? I believe that is what is causing my night time SOB and racing heart.. It has been connected to at least some of the LC sufferers. Some of the symptoms are the SOB and heart arrhythmias (can be worse at night especially towards morning), bloating/digestive issues, headaches, fatigue, stiff joints, skin problems, brain fog, congestion.

Have you considered the possibility that it might be your heart? I developed microvascular endothelial dysfunction after my first Covid shot, which got much worse after my fourth round of Covid. Microvascular dysfunction causes the microvessels in your heart to constrict, especially with exertion (like climbing stairs), resulting in heart attack symptoms: shortness of breath, chest pressure, chest pain, fatigue . . . .
Not every cardiologist is familiar with microvascular dysfunction, but Mayo has some of the best. That's where I got my diagnosis and where I've gotten my best treatment.

Can you describe test to diagnose your heart microvascular dysfunction? (My echo was normal as was 3-day heart monitor). The inhaler prescribed (Symbicort) does nothing; in fact it makes my symptoms worse. Curious if I should further explore with cardiology- or Mayo if necessary. Also, is there a drug treatment or simply lifestyle changes for you?

Thanks I think there are so many guidelines and some areas can be grey on what you did and what worked for you and what clues you got from researchers I worked with. Yes I do think what they are showing is better clues as to what we should try. I really think you have to let people tell their truths and let the reader decide in someone's story. Yeah I am not happy with how the healthcare system ignored us with covid vaccine injury. I think I have the right to say so. I also have been treated poorly and tracked so badly with so called experts. I think that is helpful for those who are thinking it must be me when in fact there is so much of this that still goes on today and it is systemic. I also cite research papers that are helpful with the issues I was able to track down. Doctors just don't have the time to do this for some of us who have unique genes. Because this site is linked with a healthcare system I think there can be more censoring with how people feel about the treatment from this sector. I just thought this would be a good place to provide links to new data about iron deregulation with covid and this may open some eyes about breathing issues. Afib is also big problem with us and now cardio docs are giving us pills that make that worse with iron deficiency. Vitamin D has tons of links for helping afib. So not sure what the purpose of this site is just to let some steam off in short friendly tone or to actually share pertinent data since docs are not doing it. That is why they are here in the first place.

Thank you, folks, for taking the time to write your indepth suggestions. Will pursue the cardio route. I hope I will be able to post good results to pass on to others.