Anyone here have Fuch's Dystrophy?

I went in to have an initial consultation for a cataract surgery that I have actually looked forward to as an artist with increasingly blurry vision. The surgeon mentioned I have mild Fuchs Dystrophy and said I could still have the cataract surgery, but now that I look it up, it seems that maybe I shouldn't. Appreciate Thoughts on this.

Please visit cornealdystrophyfoundation.org
There is a group for support and info among other things. Very helpful.

Welcome @italywoman, Thanks for the great reference. I thought I would share the link for you since new members are not allowed to share links for a short period of time to prevent advertisers from spamming our community.

--- The Corneal Dystrophy Foundation: https://www.cornealdystrophyfoundation.org/

Are you able to share a little more about your experience with Fuchs and what has helped you?

I had cataract surgery on my right eye and it became blurry. I couldn't see anything when I went back the next day. So we waited a bit and it got a little bit better. The eye specialist was in the next room and she came and looked at my eyes. It took her all of two minutes to say, "You have Fuch's". My cataract was very large and dense. I think it just weakened the tissue. So I had a transplant. The next day "WOW" I could see. Week later I had 20/25 vision. I will be having the transplant/cataract surgery both at the same time in a couple weeks. I don't know if my parents had Fuch's but the doctor said it could be random. Mostly seen in Norwegians/Germans, the guy who discovered it was from Austria. Also the specialist told me that if you don't look at the eye from a specific angle and with the right lighting and equipment it can be missed. If you do have Fuch's and you are considering cataract surgery I would do them both at the same time.

My sister had cataract surgery over the summer. In October they told her she had a tear on her cornea and may need a transplant. They didn't give her a name but said it's hereditary. She goes this month for a follow up. My research is fuchs disease but that's all I have to go on. My sister is also a candidate for glaucoma and takes eye drops daily.
My poor family has been through so much... I was diagnosed with AMD another hereditary disease. Out of all of my cousins, my family is the only one to keep getting hit over and over. I've lost four siblings to rare diseases... it just keeps coming. All I can do is pray.
I wish no harm on anyone but it hurts to feel targeted. Just saying.

I have had dry intermediate AMD for over ten years. I see a retina specialist every 6 months and cataracts have been removed. I went to see an optometrist last week for a prescription for low vision driving glasses. He said I have Fuchs. I then called my retina doctor and his nurse said he noted cornea thinning. No formal Dr diagnosis but now I see my driving deficit is probably not more AMD but Fuchs related. I will ask my retina specialist for a cornea Dr referral when I see him this August. in the meantime I will use the over the counter m 128 drops 5percent ointment for cornea swelling at night and the drops at day. I guess I am being as pro active as I can. How are both diseases managed together? If my AMD goes to wet then a cornea remedy can’t be used but if AMD is stable at intermediate they can treat the cornea with surgery? Any other cornea thinning diseases ? I haven’t received a formal diagnosis from a Dr actually just the optometrist.

I had my vision dimming and could not drive at night. Have cataracts in each eye. One eye operated to take
out cataract and eyesight improved but felt the eye was full and had some discomfort. Found out that I have cornea thinning or "holes in each cornea". I was not told about this until I was in follow-up. I cancelled other eye in having surgery. Since then I am thinking I was not informed about the actions of the disease and feel like I am floundering. Apparently, they thought I would have a patch done for each eye, but could not say anything but usually successful. Also, was told that taking out the cataract often led to more problems. I am 81 and am trying to keep the disease in a mild state. I have heard that driving long distances will put stress on my eyes even when wearing appropriate sunglasses. I put drops in each eye 6 times a day. I am going to find another opthamologist as this group could not wait to be done with me.

👍

Thanks for the hug. I know there is no crystal ball for specialists, but I like to hear the game plan before put into action. I realize from reading comments that Fuchs Disease is indeed
inherited and some people get lucky with surgery for the DASEK, or even having the cataract removed can make eye worse. Not expecting specialists to be psychologists, but it is traumatic when eyes are involved.

I was diagnosed at age 65 and just in the past 2 months at age 85, I'm having blurriness and loss of vision problems. 20/70 in the rt eye. After 2 weeks of Muro128 drops 4x/day and Muro 128 ointment at bedtime, my vision is 20/60. I will continue with the drops and ointment and wait for my referral to a Corneal specialist.
Betty S