I have a mass on my kidney

Posted by chucklesintx @chucklesintx, May 19 1:40pm

Hello all,
36M. I have noticed that I have some pain on my flank for some time but alwyas took an anti biotic and felt better. Anyway, yesterday I had a really bad abdominal pain like I have never felt before.

Went to the ER, did a CT scan and was told I have a mass/lump on my kidney. I'm in a lot of pain. My family lives outside the US, parents are elderly and my entire world has been turned upside down.

I'll be getting a biopsy soon to know but I'm in so much pain. Was prescribed Tramadol but it's so bad and I can't go back to ER for pain meds because they ignored me.

I've been crying. I feel so alone and helpless to face this fight.

Interested in more discussions like this? Go to the Kidney Cancer Support Group.

Profile picture for jv1715 @jv1715

I will be doing MRIs the 5 of them the next 2 years. I am not allergic to meds, so no negative reaction with CT a few months ago, nor last MRI, hopefully it stays that way for me.
This too shall pass!

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When kidney mass was detected the first doctor said kidney has to be removed. I was upset and after few hours my brother and me discussed and decided to go to another 3 doctors for second opinion. We went to second doctor he was excellent doctor but very commercial. He said to do a pet scan again. We went to third doctor which is a charitable hospital. The doctor was excellent and said there is a 70 percent chance that only partial nephrectomy will solve. We were satisfied and i will undergo surgery here. We went for fourth doctor he was excellent and said 70 percent kidney is good and partial nephrectomy will solve. This was a private hospital. Finally I decided and undergone surgery in charitable hospital. Its very good they successfully done surgery and discharged in 4 days. I believe in god and with his blessings i happy and recoverd 80 percent in 70 days

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Profile picture for jmevrs @jmevrs

When kidney mass was detected the first doctor said kidney has to be removed. I was upset and after few hours my brother and me discussed and decided to go to another 3 doctors for second opinion. We went to second doctor he was excellent doctor but very commercial. He said to do a pet scan again. We went to third doctor which is a charitable hospital. The doctor was excellent and said there is a 70 percent chance that only partial nephrectomy will solve. We were satisfied and i will undergo surgery here. We went for fourth doctor he was excellent and said 70 percent kidney is good and partial nephrectomy will solve. This was a private hospital. Finally I decided and undergone surgery in charitable hospital. Its very good they successfully done surgery and discharged in 4 days. I believe in god and with his blessings i happy and recoverd 80 percent in 70 days

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Always a good idea to get other opinions and go with best information you have.
In my case my best friend is a doctor, although his specialty is internal medicine. I asked for his opinion on all medical matters, even though I have my own oncologist and urologist.

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@chucklesintx, it is so hard to be alone during a medical crisis. Have you had the biopsy? Any news? How are you doing?

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Hi Colleen,
I'm going ahead with surgery. I'll be seeing a surgeon on the 16th and i'll be having further tests to characterize the tumor and then we can have a surgery plan. I also have a second opinion scheduled so i just have to fortify my mind right now until I know more.

It's tough but if i'm going to beat this, I have to be tougher and i plan to be.

Thank you so much

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Profile picture for chucklesintx @chucklesintx

Hi Colleen,
I'm going ahead with surgery. I'll be seeing a surgeon on the 16th and i'll be having further tests to characterize the tumor and then we can have a surgery plan. I also have a second opinion scheduled so i just have to fortify my mind right now until I know more.

It's tough but if i'm going to beat this, I have to be tougher and i plan to be.

Thank you so much

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This too shall pass!!!

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Profile picture for jv1715 @jv1715

This too shall pass!!!

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Thank you. Saying that this is hard is an understatement.

Getting a diagnosis at 36 is life altering. Thinking about my struggles in life and how things will never be the same again. I pray I live to be 50. I hope I can have children, I hope I can see my kids graduate high school. I hope I can see them graduate college. It's a lot to deal with.

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I also had Kidney Cancer (62 Male). Had some ongoing divirticulitis and they wanted to do a CT Scan to get a better view. They found a mass on my right kidney. No symptoms at all. It was 8-9cm and ended up being stage 3 based on the charts they use. Had the whole kidney removed. The Dr said based on all info it is 85% chance it is one and done. No Chemo, no radiation and it most likely will not come back. He said a round of Keytruda could boost that to like 90% or more that it will never return. I am currently weighing that option. It would be the smaller dose every 3 weeks for 12 months. Good luck with everything. I am totally fine (still messing with divirticulitis) and have no ill effects from kidney removal. Went back to work after 2 weeks (desk job). Don't let it take you down a bad road. A mass on the kidney is not a death sentence. Take care my friend.

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Profile picture for jv1715 @jv1715

This too shall pass!!!

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Sending prayers to you🙏

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