EEG after 2 seizures, also have irregular heart rhythm
I have had 2 seizures. One in February , the second in April. These are the only seizures I have ever had. Both happened at almost the exact time in late evening shortly before bedtime.
The first seizure happened while on vacation. I was in the hospital for 2 days
Doctors said they did not think it was a seizure but a cardiogenic hyperfusion syncope to the brain that can resemble a seizure. I have had 2 valve replacements and have irregular heart rhythm. They said I should not take seizure medication.
The second seizure happened while at home. Doctors said it was a seizure, put me on Keppra and told me to see a neurologist.
Very confusing so I headed to Mayo … neurology. While there I had an EEG and a MRI with contrast. Everything was normal. Other than typical white mater in an aging brain. I am 83
Mayo now wants me to have an in home ambulatory 48 hour EEG Just found out my out of pocket cost is $500. After Medicare and my plan G supplement.
There is no way I can afford this.
Any comments will be appreciated.
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@gmamrj
It is quite common to have seizures at/around the same time on a regular basis.
Heart issues like arrhythmias, hypoxia, etc occasionally cause seizures too in some people.
As far as determining exactly what happened after the fact may or may not be possible. But if your told the cause whether cardiac induced or an actual seizure caused by abnormal electrical activity I probably be very cautious of the diagnosis.
Take care,
Jake
I would agree to tread lightly and look at the ambulatory EEG as something to seriously consider with the understanding it might not show anything since most of our seizures don't operate like clockwork. With that said, if you are to trust any doctors, trust Mayo.
Does anyone have horrible effects taking Keppra. I am taking 250mg twice a day. I hurt all over. Really tired and irritable.
I started on Dilantin and lamotrigine for seizures but switched to Keppra because it was a “newer” medication. I had a horrible result. I was extremely irritable and had a reduced ability to control my emotions. I went back to my 2 previous drugs. My neurologist said different medications work differently in controlling seizures for different individuals. Work with your neurologist in coming up with with a “cocktail” of meds that control your seizures with the least side effects.
@tsbrock
I started on Dilantin then added Phenobarbital. Sixty years ago there were no second generation drugs like Keppra or Lamictal etc.
Someone wrote to me a while back from Africa saying her boyfriend was on three seizure medication and still having seizures. I mentioned to her about asking her boyfriends Neurologist if he thought Phenobarbital would be beneficial. Neurologist stopped the three newer drugs and put him on Phenobarbital. He hasn't had a seizure since. My point is just because a medicine is old doesn't make it bad just like newer medicines aren't necessarily better. Of course people are different. The problem I see is many neurologists refuse to use first-generation drugs even if second-generation meds aren't controlling the seizures.
Sorry I went off on a tangent there.
Back to Keppra and your mood issues known as Keppra rage. A number of patients have had success using vitamin B-6.
I believe B-6 apparently works best in children but has also helped adults. Certainly worth a try especially if Dilantin becomes unstable like it did with me. Keppra then my be a good alternative in controlling the mood issues.
Is the Dilantin and Lamotrigine controlling your seizures seizures?
Take care,
@jakedduck1
I completely agree with your point:
"My point is just because a medicine is old doesn't make it bad just like newer medicines aren't necessarily better. Of course people are different. The problem I see is many neurologists refuse to use first-generation drugs even if second-generation meds aren't controlling the seizures."
I've recently learned that some older AEDs belong to therapeutic classes that aren't represented in the newer generation of anti-epileptic drugs.
Chris (@santosha)