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Seeing Stoma Nurse in prep for radical cystectomy May 29

Posted by rose1966 @rose1966, May 6 5:25am

My husband is getting a RC on May 29th. I’m thankful for any help/advice you can give me on what brands of stoma bags, powders, sprays, deodorants, wafers etc. to purchase for my husband.
Also, there are 1piece and 2 pieces…also belts. Can anyone share their experience with me on what works concerning the use of a stoma bag system? I hope I’m saying this correctly. It looks so easy with videos I’ve watched…but have read it actually takes time to place everything on the stoma…around it…and get it precise.
I’m thankful for any experiences you’ve had..learned from. May God bless you all with the gift of being totally Cured from cancer. IJN Amen 🙏

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rose1966 | @rose1966 | May 18 1:37pm
In reply to @jaxfl "I use the Hollister two piece setup. I have recurring challenges with acne and allergic reaction..." + (show)
@jaxfl

I use the Hollister two piece setup. I have recurring challenges with acne and allergic reaction around the site. I started adding flonase back in and today the stoma site looked much better after my shower. I also started a leg bag as I am back in the office five days a week. Great solution to reduce frequency of bathroom trips. But the first time I wore it I had a pus filled site and some allergic reaction. Those are now healing and did not return on the second day of using the leg bag.

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@jaxfl thanks very much…all of this information helps!

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jaxfl | @jaxfl | May 18 3:34pm

Today I listed a ton of coloplast supplies on eBay. Somehow, I got one piece pouches and other supplies at some point. However, after trying a one piece once I immediately got a bad leak. So I am sticking with Hollister two piece.

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conchman | @conchman | May 18 3:35pm
In reply to @rose1966 "@conchman Yes, it’s for a radical cystectomy . He’ll be getting a stoma and the nurse..." + (show)
@rose1966

@conchman Yes, it’s for a radical cystectomy . He’ll be getting a stoma and the nurse gave him Coloplast. He’ll be using that also. The next day, fierce the surgery was all done. Were you able to get up and walk around the hospital? Thank you xx

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Yes walked right away that evening.

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1 reply
rose1966 | @rose1966 | May 18 7:53pm
In reply to @conchman "Yes walked right away that evening." + (show)
@conchman

Yes walked right away that evening.

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@conchman thank you!

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | May 31 11:22am
In reply to @rose1966 "@conchman thank you!" + (show)
@rose1966

@conchman thank you!

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@rose1966, thinking of you as you recover from the cystectomy.

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1 reply
rose1966 | @rose1966 | May 31 4:37pm
In reply to @colleenyoung "@rose1966, thinking of you as you recover from the cystectomy." + (show)
@colleenyoung

@rose1966, thinking of you as you recover from the cystectomy.

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@colleenyoung Thank you, Colleen. He’s been up and walking a lot in the hospital. Surgery went very smoothly.

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jaxfl | @jaxfl | May 31 6:22pm

Excellent! Walking helps a ton!

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