Cancer and TSH levels

Posted by michele1947 @michele1947, Mar 10 9:24am

Recently diagnosed with bladder cancer and lung cancer. My TSH level has gone up to 16. I have no thyroid as it was removed 20 years ago and I've been on the same Synthroid level pill for 20 years and all of a sudden boom I'm up to 16. My endocrinologist is only increasing me by a whole pill once a week and retesting in 6 weeks which I think is way too long but I don't know what to do.

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@abob

Yes, he has been on Keytruda immunotherapy for 1 year.
Side effect of Keytruda is thyroid issue.
He developed Afibs, also possibly caused by Keytruda, and is now taking Amiodarone for 3 months (started after the very low reading but before the very high one) which also causes thyroid issues.
Limited endocrinologists within 60 miles, few with new pt appts and those also far out.
Message from cancer RN to person I got in the phone on Wednesday is “reaching out to dr, will get back to you”. We may have to go to cancer center when his dr is at his facility next week. Again, disappointing that their communication is so poor.

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I so hear you in finding a endocrinology doctor. I found 2 that were not very close and was told the next appointment was 4 months away. Unfortunately I had to go in hospital because of pneumonia. Which sad but true was a good thing because lady in the next bed her endocrinology dr was there to see her and we talked got a appointment in 2 weeks and is 5 minutes from my.house

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@jeanne1956

I so hear you in finding a endocrinology doctor. I found 2 that were not very close and was told the next appointment was 4 months away. Unfortunately I had to go in hospital because of pneumonia. Which sad but true was a good thing because lady in the next bed her endocrinology dr was there to see her and we talked got a appointment in 2 weeks and is 5 minutes from my.house

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@jeanne1956, It is funny how things sometimes work out this way. Are you recovering from the pneumonia?

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