I was diagnosed with vulvodynia several years ago. My symptoms were a severe scratchy, burning in vulva. Found creams did not work. In fact, creams made it worse. Was finally prescribed gabapentin (Neurontin) after seeing several doctors. It took a while to take effect and I did need to increase the dosage as per the doctor's instructions, but it worked! If you are not opposed to taking medications, you may want to consider speaking to your doctor about it. It works on nerve pain although was originally formulated to treat people with seizures.
Has any one had experience in chronic pain in your vulva and vagina. This first start d when I would sit and now I have the pain all the time. Do you know a doctor, medication or anything that helps.
I've had vulvodynia for a long time. In the beginning they didn't know what it was. I go to a dr at the Mass General in Boston. She put me on gabapentin and estradoil. I would start there.
I just started having these painful symptoms. Over the last two months I have been to several doctors and GYNs and they are not sure what is wrong, but have ruled out any yeast, bacterial or virus. They say I have atrophy of the vulva (most likely the vagina as well), and have prescribed estrogen cream. As I am in a heightened state of pain and itching (comes and goes, but it seems like it is always there) over the last few weeks, topical relief seems to be the only help. The estrogen cream seems to make it burn and itch more, so I have held off on that treatment for a few days to get some relief. I also have been diagnosed with neuropathy for the last four years, and experience many symptoms of Sjgorens as well. Up till now, I have been managing my symptoms, but this is a horror! Most doctors don't have any true understanding of neoropathy and treat symptoms as best they can. I must say I am frustrated by all the expensive and ineffective prescriptions my GYN and doctor have thrown at this over the last month or so with little result. Can anyone relate and is there a next step for me?
I am also managing my vulvodynia right now,but unfortunately I never know when it will come on. I've missed special times because of this. I am on estrogen and gabapentin. If anyone has any other tips I'd be glad to hear it.
Compounded DCBG cream: diclofenac, cyclobenzaprine, baclofen, gabapentin. There's about two more ingredients that are just part of compounding and I'd have to look them up.
I've had vulvodynia for 2 wks now. Can anyone tell me how long it last for them. In the past I've had it for about month. Has anyone tried the amitriptylne cream and does it help.
I am undergoing treatment now at Mass General, Boston. My treatment is gabapentin and estradoil. My Dr wants me to try pelvic floor therapy also. I am just having a flare after a pap smear so still in process of getting under control. Hope this helps you.
Compounded DCBG cream: diclofenac, cyclobenzaprine, baclofen, gabapentin. There's about two more ingredients that are just part of compounding and I'd have to look them up.
Connect
Connect
Like
Helpful
Hug
I take Gapentin and it helps a lot. I've had to increase my dose,but I'll try anything.
-
Like -
Helpful -
Hug
1 ReactionI've had vulvodynia for a long time. In the beginning they didn't know what it was. I go to a dr at the Mass General in Boston. She put me on gabapentin and estradoil. I would start there.
-
Like -
Helpful -
Hug
1 ReactionI am also managing my vulvodynia right now,but unfortunately I never know when it will come on. I've missed special times because of this. I am on estrogen and gabapentin. If anyone has any other tips I'd be glad to hear it.
-
Like -
Helpful -
Hug
2 ReactionsI am having a flare up and have been using ice to sooth it. I try aquaphor. Does anyone have a suggestions that have worked for burning. Tks
-
Like -
Helpful -
Hug
2 ReactionsEverytime I put a cream on vulvodynia it burns more. Has anyone had this same experience. It seems nothing works,but sitz baths and ice. So frustrated
Compounded DCBG cream: diclofenac, cyclobenzaprine, baclofen, gabapentin. There's about two more ingredients that are just part of compounding and I'd have to look them up.
-
Like -
Helpful -
Hug
1 ReactionI've had vulvodynia for 2 wks now. Can anyone tell me how long it last for them. In the past I've had it for about month. Has anyone tried the amitriptylne cream and does it help.
I am undergoing treatment now at Mass General, Boston. My treatment is gabapentin and estradoil. My Dr wants me to try pelvic floor therapy also. I am just having a flare after a pap smear so still in process of getting under control. Hope this helps you.
Hi bluefish,
Do you get relief from this compound?
Thanks
I meant blueskies