Connect
← Return to Camzyos improved my gradient but my symptoms are not better
Discussion
Camzyos improved my gradient but my symptoms are not better
Hypertrophic Cardiomyopathy (HCM) | Last Active: Jun 4 12:21pm | Replies (37)Comment receiving replies
We are on a similar path...started Camzyos in Jan at 5mg, then the put me to 2.5mg, then off it a month, then back on. After consulting with a surgeon (Dr. Swistel - NYU), I decided to go that route instead. Seems like our condition is mechanical and the myectomy and valve repair just seems to make more sense. And, as you mentioned in another post, I'm not comfortable not knowing the long term effects of Camzyos. I've been off it for about a week...stairs are already getting harder. My surgery is June 25th...I think you are about a week ahead of me. Positive thoughts being lifted for you!
Replies to "We are on a similar path...started Camzyos in Jan at 5mg, then the put me to..."
Connect
Been off camzyos now 17 days! Doing pretty good so far as far as walking around im not riding my bike anylonger went out for a ride after being off camzyos 5 days and was struggling just to do 1 1/2 miles!
I have started getting tightness in the left side of my chest! My mayo cardiologiat has asked me to please take it easy, he said we put you on camzyos to get you stronger before your surgery day and we dont want you to relapse back to another heart failure by working out too hard!
Yes my surgery day will be on the 19th
I wish you the best and hopefully we heal quickly and get back to doing the things we love!