Could this be chronic pancreatitis?

Results came back for second elastase test it was normal, fecal fat normal, gallbladder hida normal. I am feeling very lost as to what's causing these issues. I did a full 180 on my diet incorporating healthy grains decreasing fats and sugar. Increased fiber intake. Stools are still lighter in color than usual but aren't yellow as they were for weeks. I started using florestor this week as well. I have had a few normal stools, at least normal to how I remember them being last year before all this began.

I met with gastro this month and their diagnosis is a brain gut disconnect where I am still receiving pain signals though the infection is gone. It's a possibility that I am not dismissing entirely but I still haven't gotten a real answer on iron deposition issues over my liver and pancreas. I also noticed on another scan for a separate issue that they noted a splenule, I am reading there are some complications that can come from these and they can be mistaken for neuroendocrine tumors or vice versa.

Not entirely sure how I feel about this brain gut disconnect as my symptoms under the rib were mild in March where it was a feeling of having something under my rib which then flared into intense pain the beginning of April throbbing, stabbing in front and back of ribs then changed into itching crawling and shooting nerve pains across my rib and up my back. This went on for two weeks and now I am again back to the feeling of having something under my rib, and my back is inflamed and only on the left side mid back and shoulder blade.

I am seeing massage therapists for my back and a physical therapist too but neither have helped yet. There is a small lump in between muscles in my back that may be a knot. I will try to have it checked out by my doctor.

I had an MRI done of my spine as well that showed no tumors or anything sinister in March. I will try other gastro teams to see if there is anything they see but I am beginning to lose hope here. Not sure if I will have another flare up - we shall see. It's been a really nice quiet week I am appreciating it very much.

Is there anyone on the board that has chronic pancreatitis that can describe their symptoms? Is the pancreas visibly enlarged in scans, is the pain constant, are there flares? What causes flares? What was the definitive scan or test result that warranted the diagnosis?

I have been struggling with abdominal pain for the last 6 months that gets worse when I eat or drink. I have lost 35lbs. I am nauseous all the time and unable to eat without pain, even a bland diet or liquid diet, low fat etc.. I have had CT Scans, Ultrasounds and upper endoscopy, all normal. I have had low lipase levels and borderline vitamin deficiencies. Liver enzymes have also been elevated. I have had a partial gastrectomy due to gastroparesis over 12 years ago and have not had any issues until the last 6 months. Recently had a HIDA scan and it showed slow emptying of bile. They tried to perform an ERCP and were able to get to bile duct but unable to enter it due to anatomy. The angle was such that they could not get the wire set correctly. They did see bile emptying so we know it is not completely blocked. There is also a blind loop that is 5cm long from the partial gastrectomy which a concern was food maybe getting stuck although there did not seem to be any in the loop during the ERCP. Just trying to see what should they look at next? Could if be chronic pancreatitis or something else..

I have been struggling with abdominal pain for the last 6 months that gets worse when I eat or drink. I have lost 35lbs. I am nauseous all the time and unable to eat without pain, even a bland diet or liquid diet, low fat etc.. I have had CT Scans, Ultrasounds and upper endoscopy, all normal. I have had low lipase levels and borderline vitamin deficiencies. Liver enzymes have also been elevated. I have had a partial gastrectomy due to gastroparesis over 12 years ago and have not had any issues until the last 6 months. Recently had a HIDA scan and it showed slow emptying of bile. They tried to perform an ERCP and were able to get to bile duct but unable to enter it due to anatomy. The angle was such that they could not get the wire set correctly. They did see bile emptying so we know it is not completely blocked. There is also a blind loop that is 5cm long from the partial gastrectomy which a concern was food maybe getting stuck although there did not seem to be any in the loop during the ERCP. Just trying to see what should they look at next? Could if be chronic pancreatitis or something else..

I have been struggling with abdominal pain for the last 6 months that gets worse when I eat or drink. I have lost 35lbs. I am nauseous all the time and unable to eat without pain, even a bland diet or liquid diet, low fat etc.. I have had CT Scans, Ultrasounds and upper endoscopy, all normal. I have had low lipase levels and borderline vitamin deficiencies. Liver enzymes have also been elevated. I have had a partial gastrectomy due to gastroparesis over 12 years ago and have not had any issues until the last 6 months. Recently had a HIDA scan and it showed slow emptying of bile. They tried to perform an ERCP and were able to get to bile duct but unable to enter it due to anatomy. The angle was such that they could not get the wire set correctly. They did see bile emptying so we know it is not completely blocked. There is also a blind loop that is 5cm long from the partial gastrectomy which a concern was food maybe getting stuck although there did not seem to be any in the loop during the ERCP. Just trying to see what should they look at next? Could if be chronic pancreatitis or something else..

I have been struggling with abdominal pain for the last 6 months that gets worse when I eat or drink. I have lost 35lbs. I am nauseous all the time and unable to eat without pain, even a bland diet or liquid diet, low fat etc.. I have had CT Scans, Ultrasounds and upper endoscopy, all normal. I have had low lipase levels and borderline vitamin deficiencies. Liver enzymes have also been elevated. I have had a partial gastrectomy due to gastroparesis over 12 years ago and have not had any issues until the last 6 months. Recently had a HIDA scan and it showed slow emptying of bile. They tried to perform an ERCP and were able to get to bile duct but unable to enter it due to anatomy. The angle was such that they could not get the wire set correctly. They did see bile emptying so we know it is not completely blocked. There is also a blind loop that is 5cm long from the partial gastrectomy which a concern was food maybe getting stuck although there did not seem to be any in the loop during the ERCP. Just trying to see what should they look at next? Could if be chronic pancreatitis or something else..

There is an issue with the gastrectomy which could possibly be causing the issue. They left what is called a blind loop which is basically an appendage that goes no where. It is longer than they would have expected so the thought is that food maybe getting stuck in there and causing pain till it comes out. They were trying to rule everything else out first because this would be a major surgery. I am not sure what is next, I a, waiting to hear back from the doctor. It is very frustrating because I know there is an issue and they have been unable to pinpoint it. This has been going on since October. Not being able to eat without pain has been extremely hard. I am hoping the doctors have a plan soon.

Results came back for second elastase test it was normal, fecal fat normal, gallbladder hida normal. I am feeling very lost as to what's causing these issues. I did a full 180 on my diet incorporating healthy grains decreasing fats and sugar. Increased fiber intake. Stools are still lighter in color than usual but aren't yellow as they were for weeks. I started using florestor this week as well. I have had a few normal stools, at least normal to how I remember them being last year before all this began.

I met with gastro this month and their diagnosis is a brain gut disconnect where I am still receiving pain signals though the infection is gone. It's a possibility that I am not dismissing entirely but I still haven't gotten a real answer on iron deposition issues over my liver and pancreas. I also noticed on another scan for a separate issue that they noted a splenule, I am reading there are some complications that can come from these and they can be mistaken for neuroendocrine tumors or vice versa.

Not entirely sure how I feel about this brain gut disconnect as my symptoms under the rib were mild in March where it was a feeling of having something under my rib which then flared into intense pain the beginning of April throbbing, stabbing in front and back of ribs then changed into itching crawling and shooting nerve pains across my rib and up my back. This went on for two weeks and now I am again back to the feeling of having something under my rib, and my back is inflamed and only on the left side mid back and shoulder blade.

I am seeing massage therapists for my back and a physical therapist too but neither have helped yet. There is a small lump in between muscles in my back that may be a knot. I will try to have it checked out by my doctor.

I had an MRI done of my spine as well that showed no tumors or anything sinister in March. I will try other gastro teams to see if there is anything they see but I am beginning to lose hope here. Not sure if I will have another flare up - we shall see. It's been a really nice quiet week I am appreciating it very much.

Is there anyone on the board that has chronic pancreatitis that can describe their symptoms? Is the pancreas visibly enlarged in scans, is the pain constant, are there flares? What causes flares? What was the definitive scan or test result that warranted the diagnosis?

Hi, I'm new here and from New Zealand.
I have Chronic Pancreatitis and have had it, about 15 years now, I was diagnosed in Australia, and I have had many, many Acute Pancreatitis episodes, which I don't wish on anyone, they are hell
My bloods, amalyse/lipase were at the highest ever at 3,200,after been medically induced by an ERCP, so no more of those in Australia.
A year or so ago, I got AP again, vomiting copious amounts of skinny,green bile,so sick,and couldn't stop vomiting and the pain in my stomach, crippling.
So in those episodes in Australia I would go to hospital, placed on a drip, and given a PCA for pain relief, and rest of the pancreas, that is all they can do.
Then I came home to New Zealand and because I needed pain meds, only one lot, as went off a lot, I was told, I was an addict, so not true, I have real pathology but they don't believe me here.
My cells in my pancreas are burnt out, so if I have an acute episode my amalyze lipase don't elevate, I get the shakes, a temp,and sick.
Last acute episode I was sent home, I can't have any pain relief, as a nasty Dr made sure he stopped that, abusing his power

4 years ago, I saw a gastro specialist with my then husband, he said come back in a few years, so I can diagnose you with Pancreatic Cancer.. I was horrified but what he meant was Chronic Pancreatitis can lead to Pancreatic Cancer, I never saw the Dr again as no follow up, never has been.
I get pain flares more frequently these days, I have nothing for pain as they won't let me, yes inhumane.
The pain comes and goes, I used to take Creon, it's a digestive enzyme for CP, but I found it not helpful as the episodes come and go.
I can't and don't eat much, and yellow floaty stools, that smell yucky.
Oh yes, last CT years ago, my pancreas is dying, it's called Atrophy so no follow up, I don't even have a local Dr, I see a nurse, that's it.
I travel an hour there, and back, as short in Drs in my country.
She keeps saying let's do bloods, every time.. I requested a CA 19-9 which is a Tumor Marker for the pancreas.
It's is elevated, to only 49,but has risen, no action by the nurse, or anyone
Last week I saw the Nurse as my stomach upper and my back same area, was in agony, I said to her, Look the amalyze or lipase don't show, my cells are burnt out, and she pushed down on pancreas and set the pain worse.
I asked for the CA 19-9 test, she didn't do it, she wasn't listening, I went back, then she did it.
So my Gamm GGT, AST(liver and pancreas enzymes)are rising and very high too.
My platelets low, my WBC and neutrophils, and lymphocytes all low, and dropping.
Yet here I am, no follow through
Im on my own, and I know I will probably get Pancreatic Cancer.
I have lost 20 kilos in last year, no action and lastly I'm so, so so tired
Next is a bone marrow biopsy that I had to pay big money, to go private, the tiredness is crippling, I don't know why, but that's a run down.
Healthcare in this country is 3rd war almost, and I have been labelled as something I'm not.
I'm 61 soon, I'm sick, and getting sicker, but the attitude of health care, is called, oh sorry, you fell through the cracks, and that's it, nothing I can do, if in pain, I have to suck it up, I used to take pain relief as I needed it, I stopped taking it 4 times to lower my tolerance on this 4th time, this nasty Dr said, he's going to make sure, even if I have cancer, that I never get pain relief ever again, because I made a complaint about him, serious too, so he didn't like it, so everyone listens to Drs don't they, even when they lie, which he has, so no matter what, even if it's advanced to cancer, probably has, no action, no relief, no dignity, no life, that's me though, my story.
Chronic Pancreatitis is serious, I have double duct sign, no action, pneumonia, no action.
A splenic Artery Aneurysm, no action.
Cirrhosis of my liver, no Dr watching that,
It's really bad, as I was a nurse in Australia now I'm sick in New Zealand and can't get any help, they don't care, through the cracks, I went, and stay.
I hold on to faith, God, because HE is the only one walking beside me, through this nightmare.
Feel free to ask questions if I left anything out about Chronic Pancreatitis.
I also have a gallstone, surgeon refused to remove it, it got stuck once in my bike duct, that was a living hell, they won't remove it.
So I will leave it there
All the best
Anne-Marie