Median Arcuate Ligament Syndrome (MALS)

So by having a high grade stenosis of the Celiac Artery, what would be the next steps after the full GI work up?

Does anyone have any info on the laproscopic robotic surgery? recovery time, and sucess?

Thank you for sharing hope you can help. I woke up the day after Christmas in severe pain on my left side below my ribs. I thought it was constipation. After a week of pain and constipation I was able to get a colonoscopy and endonoscopy. That found nothing. I than did a ct scan that found the Mals. Now I’ve had another ct to see how blocked it is and after seeing a few dr.s was sent to a vascular surgeon he seems to think it’s a sore muscle. He said I would be vomiting and have Nausea when I eat. However I can’t eat much food and I do get a stomach ache and the throbbing pain has NEVER STOPPED. I also have continued the constipation issue. I’m getting a 2nd opinion tomorrow from another vascular surgeon. Can you give me advice on what I should ask him? I desperately want to get back to health. I am 47 & have always been healthy and exercised daily until this.

I am having the same exact problems you Are and have been to several vascular surgeons and GIs. You need to send your records to Dr. Hsu in Connecticut enjoying the MALS PALS Facebook page to learn more.

Hello,
I have just been informed that I am getting the robotic assisted laparoscopic Mals surgery... Does anyone have any experience with this? And could supply me with some information?

Whoa! Who is doing that? Do you have an artery compression or is it the ganglion nerves? I have never heard of anybody having robotic surgery for that and I am on the MALS PALS Facebook page that is extremely informative. They’re only a few doctors in the entire country that are capable of doing the surgery without having to have another surgery performed by a different doctor to fix but the first one screwed up. I would do a heck of a lot of homework before I loud somebody to do that surgery especially robotic and laparoscopic. If you’re not already on the mals pal’s Facebook page you need to get on it. Now only read what everybody has to say but they have a lot of documentation and list of doctors who are preferred surgeons for this particular surgery. We are finding out from a lot of people that laparoscopic ends up going to an open surgery later down the road. Which then causes more problems.

I have severe aretery compression, but the surgeon said that he will cut not only the ligament away but also seperate all the nerves.... Is that the ganglion nerves? I have been followed by cincinnati childrens, so I'm getting the surgery done by someone there... According to him, he's done a bunch of these such cases with an 80% sucess rate, and has never need to resort to open during the surgery... The 20% he says had a different diagnosis which was causing their symptoms so the surgery didnt help..

Well said

You are correct about comorbidities and one of them is fibromyalgia which is still miss understood by most of the medical community including Mayo Clinic who tried to say that I had Munchhausen‘s! I finally went to other doctors that were local and they found diagnoses that Mayo Clinic never even thought of even though I gave him every medical record every symptom every surgery every allergy everything. I ended up canceling the rest of my appointments there because they Cut and wrap their head around the idea that fibromyalgia is real although they have a fibromyalgia clinic and want you to go through a three week pain management class the cost $42,000. People I’ve been dealing with fibromyalgia for 25 years I don’t need a $42,000 damn class or to be told that I have Munchhausen‘s. Since I quit seeing them I’ve been diagnosed with four different rare diseases including MALS.

Depending on the suspected cause, for MALS it is a diagnosis of last resort, so a comprehensive GI work up is needed. There are other diagnosis that can cause symptoms. I think this is a great resource:https://rarediseases.org/rare-diseases/median-arcuate-ligament-syndrome/