Low grade ureter and renal pelvis kidney cancer diagnosis.

Hi pcondon. Have you had any luck getting information about experience with Jelmyto?
My husband is supposed to start it in April. Thanks.

@slm189, might have experience with Jelmyto to share with you, Vicki.

@vickipm, was your husband able to start Jelmyto closer to home?

They are still working on it. First yes, then no.
We leave for a Rhine cruise with husband having a drainage tube, nephostomy, in his back, no bag.
Anyway, more procedure and then chemo in May. It's been a long 18 months. But no info about effects of Jelmyto.

I just completed the six week of Jelmyto treatments for low grade urethane papillary urothelial carcinoma. I did not have any major side effects, after the 5 and 6 treatments I developed a very itchy rash mostly on my hands and feet, it was uncomfortable for 48 hrs and cleared completely after 5 days. Waiting to see the urologist in two weeks to find what is next. Not sure if the nephroureteral tube will be removed.

Good to know. My husband is having his 3rd round tomorrow. Only side effect so far is feeling lethargic.
We pray for positive results for you!

I am newly diagnosed with High Grade UTUC. My doctor is going straight for the removal of my affected kidney and ureter. He is not in favor of the newer options in my case. What bothers me is that cytology of my urine shows cancer cells present, but he doesn't do the one time chemo for the bladder to kill any stray cells that might be lingering there. My husband had low grade UC and after removing the little cancer, they did that treatment to his bladder. I asked about it and his answers really didn't ease my concern. I see my nephrologist June 2nd. My surgery is scheduled for June 18th. Why would he not want to kill off stray cancer cells that are in my bladder?

If you have questions about your treatment, perhaps you need a second opinion.

@u090312, have you had your appointment with the urologist? What is next? How are you doing?