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@catherine53

I was surprised with a tentative diagnosis of mycosis fungicides by a local dermatologist after 2 biopsies, and went to MD Anderson in Houston for confirmation. After extensive testing, they concluded that I do not currently have MF, but because it is so difficult to diagnose in the early stages, will treat me as though I do. They prescribed a steroid cream that faded but did not eliminate the patches. They then prescribed Desonide cream which you can only use for two weeks. In that time, one patch faded significantly but is still lightly visible, the rest have pretty much disappeared. I have a tele-appointment with the doctor at MD Anderson next week to find out what to do next. Meanwhile, I see my local dermatologist every 3 months.
This was an unwelcome surprise after breast cancer and several instances of basal cell skin cancer.

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Replies to "I was surprised with a tentative diagnosis of mycosis fungicides by a local dermatologist after 2..."

Welcome @catherine53. I’m sure this new diagnosis of mycosis fungicides was an unwelcome surprise after your other experiences with breast cancer and skin cancer. It’s encouraging to read that the Desonide cream is having a positive impact on the areas of treatment. Hopefully this is a once and done.
There are members in Connect who have shared their success stories with light therapy for their MF symptoms after initial treatment. Wonder if that would be a possibility for you?