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Cannot Regulate Body Temperature
I am at the end of my rope. I am having issues regulating my body temperature and no one can seem to tell me what is wrong with me. I’ve seen several specialists and no one seems to he able to provide a diagnosis. Most seem pretty quick to tell me that it doesn’t seem to relate to their specialty. It feels like no one even is trying to help. This has been an issue for more than ten years, but has significantly worsened over the last 4 years or so. Every time I get at all active, my body temp starts to increase. Ambient temperature doesn’t seem to have much bearing on the body temp. I don’t have a problem with the other end of the spectrum. I don’t seem to get cold. Almost never. Even when the environment is quite cool. It’s gotten to the point where I can’t even take care of my home and self-care is difficult. I just started checking my blood pressure when this is happening and I’m learning it is increased as well. It normally runs fairly low but is getting really high when my temp gets up. I’m seriously afraid of heatstroke or a stroke just trying to clean my house or fold my laundry. I’ve have multiple appointments locally and have also been seen more than once at Cleveland Clinic. I have a teenage daughter and I’m terrified that I’m going to leave her without a mom because I can’t get any answers. Where do I go from here? How do I get someone to help me and not just push me off into another specialty because they don’t know what is causing this?
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I have hypothyroidism and Hashimotos.
Posted two times
I have had genetic testing, antigen testing, MRI’s no brain lesions. No antigens in my blood for Parkinson’s.
I have had three neuromuscular neurologist tell me it’s the motor neuropathy. I went to Boston to see a research neurologist. Definition of motor neuropathy it causes+movement disorders uncontrolled. I saw Dr anne Oaklander. Her mother,her and her daughter all research neurologist specializing in neuropathy.
Dr Oaklander is also a teacher at Harvard Neurology Department
My neuropathy I had to look up break it down to see what’s causing what. All of mine is autoimmune. Dr Oaklander did a biopsy to put my nerves in the world data base for researchers.
Severe axonal sensorimotor dysautonomia peripheral polyneuropathy
Small fiber neuropathy
Cardiac autonomic neuropathy
Autoimmune Disorders
Lupus
Sjogrens
Hashimotos
Connective tissue disease
The dysautonomia causes seizures and other problems.
So I looked at sensory neuropathy
Motor neuropathy
Small fiber neuropathy
Cardiac autonomic neuropathy
Dysautonomia neuropathy
Wrote it all down for myself. Where I know hats coming from where. Dr Oaklander suggested that to me so when 8 have @ new symptoms I know where it’s coming from to tell the doctors. Makes logical sense to me. As an RN I wish she would have included that in her lectures. Some yu can acces#con YouTube. I googled her after her name came up in my continuing education credits. I am retred aka disabled but license still active.