What should i do? My vision is deteriorating

Posted by ariza9110 @ariza9110, May 28 2:57am

so i had a problem of vision going in and out of focus near sight for long time, but in the last week and a half my vision is constantly blurry near sight, i cant read or watch videos, and my head hurts, i already went before it was that severe to neuroopthamologist and opthamologist where they did their testing and havent found anything, i did made another appoitment for neuroopthamologist but its in a long time from now and im baisically blind, i need help and i dont know where to go to my head hurts, i cant see, where to go

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mikayla | @mikaylar | May 28 7:17am

Do you have an eye clinic near you? Where do you live?

kayabbott | @kayabbott | May 28 8:04am

@arisza9110, an eye clinic or Urgent Care might get you a sooner appt; can your primary care doctor push for a appt even if with another eye doctor? I sometimes find "wtf" helpful, better than letting stress build up. I have some damage to my optic nerves (no pain), and as of this year, severe dry eye and (no symptoms) dry AMD. My dry eyes hurt and are blurry if I don't use Refresh or Systane preservative-free (PF) eye drops or eye gel (my eyes react to Visine or cheap eye drops). In the off chance this helps, if one's eyes dry out, we are blind. Is your vision worse if there is air flow (eyes dry out faster). My vision is normal as long as I use PF eye drops, otherwise it drops to 20-40 and worse, and my eyes are blurry, and feel gritty, and swollen. I now use a heated eye mask to hopefully increase oil production from the glands at the base of eye lashes (otherwise eyes dry out faster), and clean my lids with OcuSoft or gentle soap (mites can cause eye problems). Since you said the diagnosis was normal, that suggests no macular drusen or associated AMD (which also wouldn't cause the pain). My husband get retinal migraines, but your doctors should have noted that. He treats them with avoiding stress, wearing dark glasses outside, and resting for 20 min until they are gone. https://my.clevelandclinic.org/health/symptoms/24262-blurred-vision

seniormed | @seniormed | May 28 10:08am

You need to get attention ASAP even if it means going to an emergency
room. There is the possibility of GCA -inflammation of the blood vessels
in your head causing headaches and visual problems.

ariza9110 | @ariza9110 | May 28 10:23am

In reply to @mikaylar "Do you have an eye clinic near you? Where do you live?" + (show)

sorry its just that im scared, i had vision issues before but never this severe, yes i do but going to a opthamologist feels useless since i think it might be neurological since i also have headache

56huxley | @sjs1 | May 28 10:39am

You need to be seen by a top hospital:
https://health.usnews.com/best-hospitals/rankings/ophthalmology
Check your insurance. Is your insurance keeping you from getting the best care?

kayabbott | @kayabbott | May 28 10:56am

In reply to @ariza9110 "sorry its just that im scared, i had vision issues before but never this severe, yes..." + (show)

It depends on the reason(s) for and characteristics of the headache pain. I went to 3 ophthalmology appointments over a month before I found a doctor that listened to my dry eye pain and blurry vision and gave me solutions. Most doctors are overworked and a bit burned out, so it can take time to find one that listens to you and gives you treatments. Not all doctors keep up on the science.

mauigirl17 | @mauigirl17 | May 28 11:12am

I agree, get yourself to one of the top hospitals. I had a problem with cataract surgery and my doctor was very unhelpful. I immediately made an appt at the Cleveland Clinic. It takes awhile to get in and I don't go until July, but I'm hoping they can help me. They do not ask for a referral, as many clinics do. I am grateful because I don't feel like jumping through hoops and asking my very unhelpful doctor for a referral. Not sure where you live, but there are many good clinics across the country if you are able to travel a bit to get to one.

tammyq39 | @tammyq39 | May 28 11:54am

Continue researching for specialist you need! I have Panuvitis. Very rare and I'm still trying to find the best eye dr to treat it. The steroid drops have caused steroid induced glaucoma. Anyone know of a specialist for Panuvitis? Any good luck to you! I hope you get a really good doctor!

jeanrod825 | @jeanrod825 | May 28 4:17pm

I had headaches but assumed it was allergies or sinus. Woke up Oct 17, 2024 with partial vision loss in right eye. Went to opthamologist on 18th and he diagnosed temporal arteritis, GCA. He started me on 80 mg prednisone. All tests they did came back normal, blood work, biopsy, etc. even though I was having all symptoms of GCA. It does not always show up in tests. I was then sent to Neuro ophthalmologist and have been on prednisone and I am at 10 mg at this time. Do not wait as if it is this, you can lose your vision. Very important to get treatment right away. Best of luck in finding someone who will listen to you and move forward .