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New to Hydrea for ET

Blood Cancers & Disorders | Last Active: 21 hours ago | Replies (151)

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@janemc

I wondered about this too, and did a little checking.

It turns out that wearing an alert bracelet doesn't usually improve your care in an emergency situation. Too bad!

I made a card to carry in my wallet stating my diagnosis, and that I take aspirin and HU every day.

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Replies to "I wondered about this too, and did a little checking. It turns out that wearing an..."

I'm not sure who or how you checked, but both my city's paramedics and the hospitals I go to here always pay attention to a visible Medica Alert bracelet. Mine says on the front, "I have Thrombocythemia," my name, my doctor's name, and "See Wallet Cards." On the back, it gives my PCP's Name, "I take Hydroxyurea," and "See Wallet Cards."

My wallet cards are very specific, listing main medical issues, drug allergies, and four contacts with w/phone numbers - Two are doctors, and two are close local friends. I have one card that they can scan, which directs them to a website where my full medical history, recent test results, the names of individuals with my medical directive, and other relevant information are easily accessible.

Some people have nothing like this. I would rather be overprepared than underprepared. The medics and doctors would prefer that also. If I am unconscious, obviously I can't give them any information!