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New to Hydrea for ET

Blood Cancers & Disorders | Last Active: 23 hours ago | Replies (151)

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@circawdm

Just saying, "You have a JAK2 V617F is not enough! In my opinion and many oncologists' opinions, diagnosing to be sure you have ET can only be 100% accurate if you have the BMB! It can tell a hematologist/oncologist much more than blood tests alone. I would definitely ask to have one done when you see the UCLA! Bleeding can be caused by several things -- very high platelet count, which crowds out other blood cells, very low platelets, etc. This is why you need a BMB to see exactly what else is going on and get a "baseline" of all your important cell counts.

I am so glad you'll be seeing a specialist at UCLA soon! PLEASE have them order a CT guided BMB for you while you are there!

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Replies to "Just saying, "You have a JAK2 V617F is not enough! In my opinion and many oncologists'..."

Thank you….that is exactly what I didn’t understand that they didn’t want to know what is happening in my bone marrow. Also, why I called UCLA.

Appreciate your input.