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Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: 2 days ago | Replies (640)

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@vlf1234

The same thing happened to me in 1998. Pelvic surgery lead to Pudendal nerve damage. I developed a neuroma and my doctor in his infinite wisdom said the pain was in my head even though I lost 30 lbs and could barely stand or sit. I had a young family to look after back then too. It was brutal. I decided to leave this amateur and seek help with doctor's at an Ivy League hospital. They did pain mapping laproscopiclly and did a series of lidocaine injections. There was 40-50%
improvement and in some areas,the pain never returned! I was still in too much pain so the pain center docs tried me on seizure meds ( which made me feel spaced out everyday. )After trying other things they finally said, no more fooling around and I was put on a duragesic pain patch. That was when I got my life back! I tolerated the meds well for years! I recently moved south where the doctors are paranoid about meds. So even though I was doing well for 20 years, they've reduced my meds causing me pain symptoms again because of the hype. It doesn't matter that I've been a good and successful patient for so many years. So I reluctantly agreed to a nerve block which didn't work. I've found out one important thing in my research. Go to a doctor who's an Anesthesiologist. The MDs and DOs who are NOT anesthesiologists have less understanding and training of the nervous system and do not spend only 6 months or so learning to do injections (which in my experience has been hit or miss.) My pain doc up north who was also a trained Anesthesiologist was definitely a better pain management doc....(I miss him). Many pain patients are suffering because they're under prescribed when there's actually a small percentage that abuse their scripts or end up in trouble. Its too bad that the ignorance out there is general, because most of us want to be pain free and live life. We're not interested in getting high or abuse our meds. I recently heard that there are MRIs offered to scan nerves to pinpoint those that are damaged. If you opt for some Physical Therapy, find a pelvic floor DPT who understands nerve issues with a lot of experience. It's a battle trying to find the true expert providers out there but don't give up, advocate, research,and question everything!!! Knowledge is power ( as long as its found in the right place ( like Mayo) Hope this helps.

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Replies to "The same thing happened to me in 1998. Pelvic surgery lead to Pudendal nerve damage. I..."

All of what you said is totally excellent!