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Diagnosis Problem

Hypertrophic Cardiomyopathy (HCM) | Last Active: May 29, 2025 | Replies (10)

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Profile picture for Linda, Volunteer Mentor @walkinggirl

My HCM was diagnosed when my primary care physician noted a murmur in my mitral valve for the first time. We "watched" it for a couple of years, and I was referred to a cardiologist when it persisted. I had tests including an echo, stress, nuclear stress, and I cannot remember what else, the result was that I had HCM. I had absolutely no symptoms for at least 10 years. As the thickening increased to some point, symptoms appeared, and I eventually needed surgery. @phillymom, can you suggest to your cardiologist to order a heart monitor? ASAP. A stress test? I am not a doctor, but nonprofessional logic and because of how my own HCM progressed, those were the tests that helped me to progress along the treatment continuum. If you are unhappy with how your cardiologist is taking your symptoms, perhaps it is time for another opinion. Good luck and let us know how things are working out!

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Replies to "My HCM was diagnosed when my primary care physician noted a murmur in my mitral valve..."

Thats awesome they found it with your heart monitor.
Back in 2020 i went for my daily 3-5 mile walk i was really struggking just walking i could catch my breath it was the craziest thing legs tight chest tight it had never happened on a walk just when running and biking. I went to the emergency room and they admitted me and found nothing. They ran a ECG,EKG and did a Angiogram and did not do a stress. My resting was 22mmHG they sent me home after three days said i had mild cardiovascular disease, said my veins leaving my heart needed to dilate so they put me on carvedelol. Made me wear a heart monitor for 2 weeks
And found nothing.
When i saw the mayo doctor in dec he said i had heart failure at that time.
In fact he said everytime i got those feelings while exercising i was in heart failure!