Extreme pain in my feet. Neuropathy

Posted by jim777 @jim777, Mar 31, 2023

This started in Aug. 2008 at age 43, I put my sneaker on and it felt like the sock was bunched up at the tip of my big toe. Adjusted the sock and it was still there, checked the sneaker and found nothing. I finally went to buy new sneakers and thats when concern set in, it was the same feeling when trying on new sneakers. No pain at this time. a few months went by and felt some discomfort in my toes in both feet, my doc sent me to a foot doc, he said it wasn't my feet but something effecting my feet, maybe my lower spine? The discomfort in my toes/ball of my feet stared becoming painful as time went on. in 2011 I went to see a neurologist, got an MRI and there was some issues but nothing major, also no diabetes. I basically got nowhere. The pain would start in the afternoons and night. When I woke up it would go away, my feet almost felt normal but sometime in the afternoon it would start, pain level was low to midrange. I started putting a large blue gel icepack around my foot at night while in my recliner, switching off each foot. The cold would help. That eventually led to putting my feet in a foot basin with ice and water. The pain gradually got worse. In 2021 it finally moved from only being on my toes/ball of my feet to my arch and top of my foot. Took a chance with the neurologist again but got nowhere. in 2022 I started to get sharp stabbing/electric jolts, not all the time, some days nothing, then one toe would get a shard stab every 5-10 minutes. When this happens its usually the same place, the next time a different to. It seems to now effect my legs from the knee down. Sometimes when in the recliner my calves feel discomfort. I never had a lot of hair on my legs and the hair was a light color, almost white but I notice there is no hair from my knee down. Early this year it moved to my hands. Not nearly as bad as my feet and sometimes they dont bother me. The odd thing is warm water makes them feel better when they hurt where as my feet ice water takes some of the pain away.

A few notes. Does not effect my motor skills and never had pins and needles. Ove the last 8 yrs I've tried Tramadol, then went to Neurontin and now Lyrica. Now of them help with the pain. The only thing that helps is Percocet but cant get a permanent script for that. I actually have a few but dont take them because of the Lyrica(Pregabalin), 200mg 3 times a day. Money is an issue to, no insurance. I also tried the usual like ALA, B1, b12, turmeric etc I spent a lot of money over the yrs, nothing ever worked. The burning part I thought may be Erythromelalgia which it cold still be along with neuropathy. Whats the pain like at times? I tell my wife its like getting your foot run over by a truck, them having boiling water poured on it. Its two pains, a deep nerve pain with a burning pain.

Anyone have a similar experience? I just want pain relief and to fix this issue. Any help would be greatly appreciated.

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@adejuliannie

Sorry I misspelled it its called Sanexas it where they use electrical signals to get Nerves working. Been 2 years since I had treatment an my Feet are 98% better. Before I couldn't feel them.

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Thanks, I'll check it out.

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I have non diabetic neuropathy...over 13 years now....I tried everything , blue laser, acupuncture ,, acupressure, and many others....after a couple of years of trying all the conventional drugs gabapentin, lyrica, and others I was fortunate to stumble on a combination of drugs that has allowed me to function almost normally for the past ten years or so...
I take...
6mg hydromorph contin( slow release)......at 7am and 7pm
100mg jamp- pregabalin ...................at noon and 9am
this combination has reduced the pain, needles ,,,cold, hot from a 9-10 to an acceptable 2
Herb

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Very similar symptoms following an autoimmune reaction to a spiked drink in 2012. Good days, very bad days. Tried all the usual drugs Lyrica etc, no great long term changes. Side effects that limit your life in terms of being constantly damped down. Sensor nerve damage only thank god. But pain mostly later in the day. Have you tried medical cannabis? Or have you tracked any events - food, weather, sound, stress that make a difference?

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this may not....be a solution for you, but, who knows. I can only relate what happened to a friend.
His feet were numb, he could feel nothing............this alone is different from you, but, one never knows what may or may not help. what he did, he knew about the gold castor oil, not the one in the drug store for constipation.. the golden one is different. he also knows what cayenne peppers can do. He also knew about castor oil packs...........sooooo, he got the plastic wrap , laid it on a table, put some castor oil on the plastic, then took a bottle of cayenne that he bought in the grocery store......note, NOT red pepper Not hot pepper......actual cayenne pepper.......he poured the pepper over most of the castor oil, and lightly mixed it in with the castor oil. He then put the wrap around his leg, and also had made it large enough to wrap around most of his feet including toes. once it was well wrapped, he put like an ace bandage around it to hold it in place, .....then he put a sock over it all, and went to bed. when he woke up, he , for the first time in quite a while, was able to once again have ...feeling back.......He had no broken skin, or other potential problems with his foot or leg, that could have been a reason NOT to use the cayenne pepper.............if anyone is desperate enough to consider trying this, first see if you might have any other reasons why you could not use the pepper. the oil is used for a lot of problems, so i would think the oil is ok...........but Never, do things just because someone had success with it. Research , to see if it would be a pro or con, in your case.

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I'm sorry you're going through this. I've found that essential oils like Jamaican or Gold Castor oil preceded by a foot soak with Epsom salt to open my pores helps some.

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Your post is everything I am and have gone thru. The feeling of bunching in my shoe. The shooting electrical in my feet. The numbness. Cold feet feeling like my only savior. I am now in the swelling faze and cold/hot feeling below the knees. I do have diabetes and take metformin I also take 600mg gabapentin 3xdaily. I know when I have missed a dose. I've had nerve conduction test which showed severe neuropathy. Circulation is good. Cramps started and I began Alpha Lipoid Acid which helps. I am 69 and unsure what my future will look like. It's so sad and miserable.

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@debeve

Your post is everything I am and have gone thru. The feeling of bunching in my shoe. The shooting electrical in my feet. The numbness. Cold feet feeling like my only savior. I am now in the swelling faze and cold/hot feeling below the knees. I do have diabetes and take metformin I also take 600mg gabapentin 3xdaily. I know when I have missed a dose. I've had nerve conduction test which showed severe neuropathy. Circulation is good. Cramps started and I began Alpha Lipoid Acid which helps. I am 69 and unsure what my future will look like. It's so sad and miserable.

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I share your pain. Mine is not due to diabetes--I think it was caused by taking two days worth of methylprednisolone which triggered some kind of autoimmune reaction in me. Doctors doing rule out which is traumatic in and of itself. No diagnosis yet after a raft of testing. My best advice is to keep moving as stiffness and numbness set in if we plant our bodies on a sofa. I plan to get some kind of physical therapy and/or join a gym with personal training. Acupuncture also might help. I need to halt any progression of this nightmare.

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@arcuri24

I share your pain. Mine is not due to diabetes--I think it was caused by taking two days worth of methylprednisolone which triggered some kind of autoimmune reaction in me. Doctors doing rule out which is traumatic in and of itself. No diagnosis yet after a raft of testing. My best advice is to keep moving as stiffness and numbness set in if we plant our bodies on a sofa. I plan to get some kind of physical therapy and/or join a gym with personal training. Acupuncture also might help. I need to halt any progression of this nightmare.

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Had Sensory Neuropathy start 12 years ago after being given a spiked drink. The conclusion following extensive testing was that is was most likely caused be an autoimmune reaction from a toxin or virus. As pins and needle and the rest started 2 days after the spiked drink we can guess the culprit. thank you for sharing your information. I stopped doing thing for a while, then I found sitting on the sofa gave me pain and training at karate gave me pain however training took my mind off the pain until I stopped

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So there seems to be some mystery as to how people end up with this. What was the drink spiked with? I, too, have undergone extensive testing and it is quite unsettling. I am going to try marching in my area's Memorial Day parade. Movement seems to help but, of course, cannot be overdone. The sofa can be visited, too, but not for hours on end. I also think that weather affects autoimmunity. When a front passes through, neuropathy can be more pronounced. Am I making any sense?

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I had a sudden episode of very numb feet and a collapsing leg minutes after taking prednisone for a rash that started after gardening in my yard. The same thing happened the second day I took the med, again minutes after swallowing the pill. I discontinued the med but have had mild and worsening neuropathy in my feet and legs ever since. When I explain this to doctors I am treated with disbelief or indifference. I don’t think the cause matters, it is a finding a solution that I care about. Good luck to everyone.

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