Be honest. Be realistic. Be happy. Be grateful: Meet @dbamos1945

May 16 7:00am | Teresa, Volunteer Mentor | @hopeful33250 | Comments (19)

member spotlight @dbamos1945

TERESA: What brought you to Mayo Clinic Connect?

@dbamos1945: A neuroendocrine tumor (also called NETs or carcinoid cancer) diagnosis found by exploratory endoscopy motivated me to search online for information about symptoms, treatments and prognosis. I joined Mayo Clinic Connect to learn about my disease through peer experiences. It continues to enhance my curiosity of how others have dealt with disease symptoms, treatments and evolving new approaches being tested in clinical trials. We NET patients share the same basic disease, but our bodies react in different ways to treatments, side-effects and tumor response to drug treatment. We need to be proactive in our treatment.

TERESA: What motivates you to take part in Mayo Clinic Connect?

@dbamos1945: When you join Mayo Clinic Connect, you can choose topics of concern, how often you want to receive email notifications and you can provide a short profile of yourself.

I am motivated to respond to posts that are sincerely asking for help. I want to answer those common questions foremost in the mind of a patient who has recently been notified of a NET diagnosis. It seems to me that I have been in their shoes… scared, sleepless, desperate, and feeling like I did, “I don’t know what to do or who can answer my concerns”. I think perhaps I can help them realize they are not alone by posting words of understanding.

TERESA: What about Mayo Clinic Connect makes you feel comfortable to share and to be open with the community?

@dbamos1945:I like that Mayo Clinic Connect is moderated and has the advantage of informed volunteer patient mentors sharing facts and their experiences.

TERESA: What support groups do you participate in?

@dbamos1945: I take part in many support groups on Mayo Clinic Connect. Primarily I post in the Neuroendocrine Tumors (NETs) support group. You’ll also find me in these support groups and others: 

TERESA: What energizes you, or how do you find balance in your life?

@dbamos1945: Finding and living a life with balance is a difficult goal to perfect. I explored many religions through my years with the sincere desire to find one that was ethically above reproach and basically offered guidance to live a good life. Buddhism has answered most of my quests. Attending temple, going on retreats and a personal meditation practice manifests itself in my desire to give of myself as my goal to be of help to others. I have found calm, comfort and peace.

TERESA: Tell us about your favorite pastime or activity.

@dbamos1945: I have always loved color! I love to create with color to express my individuality. I have dappled in watercolor, acrylics, silk-screen, embroidery, cross-stitch, decoupage, ceramics, metal-art, and other mediums. 

Color in yarn is my current favorite way to create projects. I began this hobby 19 years ago, making afghan blankets for the inpatient veterans at the Veterans Administration Hospital. I have continued to donate my afghans and lap blankets twice a year. That’s about 25 to 30 per year. 

Lately I have had fun duplicating items from pictures in magazines: a bedside rug that matches my bedspread, purses, hats, shawls, market bags, holiday decorations, etc. I love to make something from nothing but a string of yarn!

TERESA: Do you have a favorite quote, life motto or personal mantra?

@dbamos1945: Be honest! Be realistic! Be happy! Be grateful!

TERESA: What do you appreciate about your friends? 

@dbamos1945: People are all different individuals making their way through this life. I have been a “watcher” and very discerning when choosing friends. I appreciate those who are comfortable living fully in reality. I also like people who express their curiosity and are quick witted. I love to find humor in ordinary comments and I am always grateful to find this personality quirk in a friend. I love to laugh!

TERESA: What do you love about where you live or vacation?

@dbamos1945: I chose to live in a retirement (CCRC) community as an independent resident over nine years ago. It offers me weekly housekeeping, several restaurant choices, etc. It is similar to living in a luxury hotel. I attend many activities offered daily, like dances, lectures, parties, entertainers, bus trips, shopping, as well as free ten-mile radius transportation.

There is a billiard room, theatre, library, arts and crafts room (with classes), game/card room, pavilion party room, fully equipped exercise rooms, free laundry rooms, outdoor pool, putting course, outdoor fountain patio, atrium and wellness nurses with 24/7 EMT available to me. This makes my days easier as I age. If my needs change, there is help readily available. There is also a separate assisted living, skilled nursing and physical therapy facility on campus.

 

All the above contribute to my being happy where I call home.

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@dbamos1945

@molly2025: Thank you for reading my Spotlight interview. I live East of LA in Hemet at The Village of Hemet.
There are lots of facilities like mine across the USA - referred to as CCRC (Continuing Care Retirement Communities). This one fit my needs and I urge others to consider this type of life. Our owners operate one in Lake Forest (Orange County I think) and another outside Phoenix, AZ.
Some facilities rent as well as life contract, so it can be affordable to many. I hope this has answered some of your questions. Thanks for asking.

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Thank you for the info.

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@dbamos1945 What an interesting, diversified background and inspiring outlook on life! I relate to much of what you've shared. Regarding gratitude, I happened to come across this quote I found in my journal yesterday: "Gratitude makes sense of our past, brings joy for today and creates a vision for tomorrow". You're truly living the wisdom of that quote!

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i had lobular bc 7 years ago. i am 77,
it was stage 1b with 1.3 cm, one sentinel node .99 mm. treated with bmx ( i freaked out), radiation, anestrozole 4 years. at 5 years i had scans with Ned- i asked dr if i would be ok and she said she never would say that because she is superstitious.
i go to psyc and he gave me many different meds to cut the anxiety but many side effects dosent help recently he gave me luvox gave me stomach ache for 1.5 years and said id get used to it and pain continued. i am looking for a way to stop n the agony ! I tried dbt, tms etc, i dont want to feel so bad for the next years.
i wonder how they help people like me at mayo clinic. i’m too far away from them. Any info would be very helpful I feel so bad. thank you
KL

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also i have diverticulitis which cooked bevstomach problem

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which could be giving me stomach pain.

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@kathy88

also i have diverticulitis which cooked bevstomach problem

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Hello @kathy88

I'm sorry to hear of all the health issues you are dealing with now. You mentioned having diverticulitis. On Connect, we have a discussion on that topic, which might be helpful to you. I suggest you post your questions about diverticulitis in this group. Here is a link,
---Diverticulitis
https://connect.mayoclinic.org/discussion/diverticulitis-8/

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I just got diagnosed 4 weeks ago temporal arteritis having a hard time dealing with it i feel I’m going in a depression former alcoholic don’t want to go back to drinking

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Hang in there, find out everything you can on line and from your caregivers about treatment. Make a care plan and stick with it. That's what my wife and I do. Keep as active as possible. Do you like gardening, woodworking, beekeeping or other interesting hobbies?

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@jparker6547

I just got diagnosed 4 weeks ago temporal arteritis having a hard time dealing with it i feel I’m going in a depression former alcoholic don’t want to go back to drinking

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Welcome @jparker6547, You are not alone and there are many members here on Connect that have shared their experience and what has helped them. Here is a link to the many discussions and member comments on temporal arteritis - https://connect.mayoclinic.org/search/discussions/?search=temporal%20arteritis.

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