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Autoimmune hepatitis.
Diagnosed with autoimmune hepatitis .
Already have PMR , GCA, and Graves’ disease.
Taking a pass on treatment. The drugs sound worse than the condition and I am 71 years old. I believe 5-10 good years better than 10-20 poor, sickly years. Any try AZA without side effects. Already taken prednisone for 7 years and finally down to one mg. Staying there.
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I was diagnosed with Autoimmune hepatitis in the beginning of 2024 and by Aug 2024, was started on Azathioprine & Budesonide because I declined Prednisone, I didn't want to gain more weight. After 2 weeks I couldn't stand the pain it was causing me, then they tried me on each medication seperately and a month later same thing happened. Then I was tried on Mercaptopurine and I had the same issue. I suffer from Fibromyalgia and have Hashimoto's and Hypothyroidism. At the moment I am on Cellcept and it seems to be working only issue is it's causing me water retention and have to take Furosemide.
OMG, so sorry.
I think the cure is worse than the disease sometimes. Dr google says a person can live 10-15 years without treatment. Even with cirrhosis 5-10. I’ll take a pass on those drugs. Thanks for the info.
I was also diagnosed autoimmune hepatitis Jan 2024. I'm on Cellcept. From what I've been told Cellcept is one of the better meds without TOO many side effects. I did go through several months of migraines, which did subside, and my hair is thinning. My feet, ankles do swell, and I get bloated, although I think that has to do with the liver, like severe itching (only at night). In spite of side effects, I have to say my blood work has been good so I work through it. The dark urine and jaundice is gone. The pharmacist said a lot of these side effects lessen as your body adjusts to meds. I hope so.
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1 ReactionThanks for the info. Good to know there is an alternative.
I am now on the no sugar bandwagon. It is hard, but it may help your liver if you ban sugar, if you have not already. Although I disagree with most of what Kennedy says, even a broken clock is right twice a day. Also make sure you keep on top of oral health. I can’t speak to the drugs, but my enzymes are almost back to normal and the only things changed are no sugar and taking care of a bad tooth. Oh - and I had a hip replacement - but that is another story - don’t get a hip replacement for your liver. lol. The bad hip did probably affect overall inflammation though.