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Autoimmune hepatitis.

Posted by chopin002 @chopin002, 1 day ago

Diagnosed with autoimmune hepatitis .
Already have PMR , GCA, and Graves’ disease.
Taking a pass on treatment. The drugs sound worse than the condition and I am 71 years old. I believe 5-10 good years better than 10-20 poor, sickly years. Any try AZA without side effects. Already taken prednisone for 7 years and finally down to one mg. Staying there.

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MyKai17 | @mydiamondsx8 | 14 hours ago

I was diagnosed with Autoimmune hepatitis in the beginning of 2024 and by Aug 2024, was started on Azathioprine & Budesonide because I declined Prednisone, I didn't want to gain more weight. After 2 weeks I couldn't stand the pain it was causing me, then they tried me on each medication seperately and a month later same thing happened. Then I was tried on Mercaptopurine and I had the same issue. I suffer from Fibromyalgia and have Hashimoto's and Hypothyroidism. At the moment I am on Cellcept and it seems to be working only issue is it's causing me water retention and have to take Furosemide.

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1 reply
chopin002 | @chopin002 | 12 hours ago
In reply to @mydiamondsx8 "I was diagnosed with Autoimmune hepatitis in the beginning of 2024 and by Aug 2024, was..." + (show)
@mydiamondsx8

I was diagnosed with Autoimmune hepatitis in the beginning of 2024 and by Aug 2024, was started on Azathioprine & Budesonide because I declined Prednisone, I didn't want to gain more weight. After 2 weeks I couldn't stand the pain it was causing me, then they tried me on each medication seperately and a month later same thing happened. Then I was tried on Mercaptopurine and I had the same issue. I suffer from Fibromyalgia and have Hashimoto's and Hypothyroidism. At the moment I am on Cellcept and it seems to be working only issue is it's causing me water retention and have to take Furosemide.

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OMG, so sorry.
I think the cure is worse than the disease sometimes. Dr google says a person can live 10-15 years without treatment. Even with cirrhosis 5-10. I’ll take a pass on those drugs. Thanks for the info.

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maize | @maize | 3 hours ago

I was also diagnosed autoimmune hepatitis Jan 2024. I'm on Cellcept. From what I've been told Cellcept is one of the better meds without TOO many side effects. I did go through several months of migraines, which did subside, and my hair is thinning. My feet, ankles do swell, and I get bloated, although I think that has to do with the liver, like severe itching (only at night). In spite of side effects, I have to say my blood work has been good so I work through it. The dark urine and jaundice is gone. The pharmacist said a lot of these side effects lessen as your body adjusts to meds. I hope so.

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1 reply
chopin002 | @chopin002 | 2 hours ago
In reply to @maize "I was also diagnosed autoimmune hepatitis Jan 2024. I'm on Cellcept. From what I've been told..." + (show)
@maize

I was also diagnosed autoimmune hepatitis Jan 2024. I'm on Cellcept. From what I've been told Cellcept is one of the better meds without TOO many side effects. I did go through several months of migraines, which did subside, and my hair is thinning. My feet, ankles do swell, and I get bloated, although I think that has to do with the liver, like severe itching (only at night). In spite of side effects, I have to say my blood work has been good so I work through it. The dark urine and jaundice is gone. The pharmacist said a lot of these side effects lessen as your body adjusts to meds. I hope so.

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Thanks for the info. Good to know there is an alternative.

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