← Return to Median Arcuate Ligament Syndrome (MALS)

Discussion

Median Arcuate Ligament Syndrome (MALS)

Digestive Health | Last Active: 5 hours ago | Replies (1229)

Comment receiving replies
@lisa01

Are you aware of a FB support group called MALS PALS. It is a support group for people suffering with MALS and their loved ones. It gives a tremendous amount of informstion of individual struggles, and various treatments and specialists that treat MALS. Highly recommended!!

Jump to this post


Replies to "Are you aware of a FB support group called MALS PALS. It is a support group..."

My mom has been dealing with what we now know is MALS for years. Her surgeon had recommended surgery and we are trying to figure out if open or laparoscopic is better. He this laparoscopic but so many has said the open last longer. Also we are trying to figure out who is the best specialist for this as her dr says hes not. My mom has had 2 other surgeries to place a stent and then to open it because it got a blood clot and place a 2nd. She has had a hard time recovering as that was in Nov and she is getting worse. Can you perhaps point me in the right direction for a Dr and opinions on how to do the surgery please.

Welcome @vdolson! Happy to have you here. Your mom's case sounds like a friend of mine, same situation. May I ask the age of your mother? It does seem to make a difference. I would recommend that your mom see's a vascular surgeon who has experience with MALS patients, and those who have had multiple surgeries. May I ask where you live? There is a list of physicians by state that other MALS patients recommend. I have experience with open surgery, I have had a bypass of my celiac artery with a Dacron graft. I had a revision done about 3 years ago. My next question, with your mother's multiple surgeries, have they all been due to MALS? Does she have an underlying connective tissue our vascular disease? How are you both holding up? This is a stressful time trying to figure out the best options!

I’m Ralph help me lm having connecting with the FB support group. Want to join, Thank yuu Ralph

Thank you for the info about the FB group!