Thank you, Yes @lisa01 I am part of MALS PALS, but I do like the security of being here on Mayo connect vs Facebook when it comes to health information security. I was hoping that a group would start here for MALS. If we had enough patients here on Mayo Connect maybe they would consider doing a webinar in the future. I really like the format of this site. I have had Open Mals surgery twice, once for a bypass and then a revision several years later. If there is anyone interested in joining me here let me know.

MALS PALS has been the most informative group we have found and up until recently all we knew about but we also recently found a new group online not on Facebook called MALS Support. Its just a website forum.. I think thats the name of the website too but can't remember. Maybe do a google search for MALS Support and it should come up not sure... Other than that it has been really hard to find support. I highly recommend the that forum because I don't like my friends seeing what I am posting on Facebook. Its too personal. I wish there was more information out there but its been hard. I have had two procedures already and this isn't a easy topic to find doctors that understand it.

Thank you for the information. I prefer MayoConnect because the way it is set up and monitored. I find the MALS group here to be respectful. Hope you will join us here!

I think I have searched prior but nothing ever came up or I would have been on sooner. Thank you for the welcome. I also may have been searching by a different name. Had to learn a bit. I always called it CACS (Celiac Artery Compression Disease) and was of course told I had celiac disease etc... All the common stories.

Yes, that would nice if we could cross reference MALS it affects so many areas. @malsman, how long have you been diagnosed? Have you found anything helpful? I had Open Mals Celiac bypass with ganglionectomy with my 1st surgery. My second surgery included a revision on the dacron graph and included a omental patching around the area to prevent scar tissue from reforming. It all seems like a blur to me.

Interesting article: http://www.thij.org/doi/full/10.14503/THIJ-12-2495?code=txhi-site

I am looking for support from those who have had this surgery. I had mine on March 30 and am struggling with the continued nausea. I had open surgery....not fun!

@artistgma nausea can be a problem if you are advancing your diet too fast. Also the pain medication can contribute to nausea. I would use Reeds Ginger Ail in between meals, or following a meal. You need to eat 8-10 very small meals a day starting out, and advance very slowly. It was at least a year before I could tolerate eating 3 meals a day, even then sometimes I apt for more frequent smaller meals. Eating things that easy to digest, I would have white toast and malt a meal. What types of food are you eating? Are you eating and drinking fluids at the same time?

Does this mean that even though you had a ganglionectomy with the 1st surgery that your symptoms can back? Did you need the omental patching around the area because scar tissue was causing problems/pain? I'm asking because my daughter is 4.25 months post op and at 2 months post op a stabbing pain has started in her epigastric region. Since there is no easy way to diagnose scar tissue I am looking at all options.

Hello @evileye00,

Welcome to Connect; you've asked some great questions. @kariulrich, @lmutska do you have any insights that might help @evileye00's daughter?