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New to Hydrea for ET

Blood Cancers & Disorders | Last Active: Jun 19 3:45pm | Replies (176)

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Profile picture for AnnK1221 @kucharski1221

Hello. I have been on Hydrea for almost 19 years. It is a relatively safe drug and I’m sure your doctor will monitor your blood levels while on it. It is the only one I’ve ever been on since finding out about my ET.
It works. I have had no hair loss. My only symptoms may be fatigue…because the chemo targets everything but just our platelets. I found out my Calr gene mutation was also to blame for this diagnosis. It can be tough having a chronic blood disorder but it is treatable. I wish you the best on your journey. 💗

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Replies to "Hello. I have been on Hydrea for almost 19 years. It is a relatively safe drug..."

Welcome to Connect, @kucharski1221. I just wanted to thank you for taking time to post the positive message about your experience with Hydrea for ET. More often, people tend to only write about negative experiences with medications even though millions of patients have successful outcomes. So your reply may be very encouraging to anyone who is new to Hydrea (HU or Hydroxyurea).
What brought you to Connect today? Were you looking for anything in particular?