1. < Gynecologic Cancers
Mentor

What were your first signs of endometrial cancer?

Posted by Helen, Volunteer Mentor @naturegirl5, Jun 21, 2022

What symptoms did you have that led you to your physician before you received a diagnosis of endometrial cancer?

I had entered menopause more than a decade ago so menstruation was done. I discovered vaginal blood one morning. When it happened again a few days later I realized that something was going on but I didn't suspect cancer. I just knew this wasn't normal. I made an appointment with a gynecologist. Within a few weeks I began having cramps like I used to have when I first started my period as an adolescent. By then I was already under the care of the gynecologist who did a D&C and that's when the endometrial cancer was diagnosed.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

marileenewman | @marileenewman | May 15 9:53am
In reply to @jane "9 years post ovarian cancer and total hysterectomy/oophorectomy, and not having had a UTI since childhood,..." + (show)
@jane

9 years post ovarian cancer and total hysterectomy/oophorectomy, and not having had a UTI since childhood, a slowly increasing pressure sensation on one side of my bladder was getting intense to the point it felt like a burning sensation on the OUTSIDE of the bladder when voiding. No bleeding. A little fullness in the lower part of the belly. Was starting to feel that starving, then sudden fullness after only a few bites, too. Had just finished signing papers to end a 33-year marriage and thought I may be getting an ulcer due to the circumstances. Went to see the GP who had been following me for almost 30 years, and he said it just didn't sound "normal" for me. Did the CA-125, the CT, the MRI, the ultrasound, the vag. ultrasound and when the results came back, they said a kidney was being pinched off by something which led to the surgery where they found cancer to be obstructing the ureter and stuck to the bladder and lining the lower right quadrant of my intestinal cavity. Needless to say, as with the ovarian cancer surgery 9 years previously, the laparoscopic surgery they had promised ended up in a full xyphoid to pubis incision (again!), along with waking up for the 2nd time in my life being told what they initially thought was benign was actually cancer. Great surgeon! 5 weeks of radiation and it's a blessing to be here!

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My goodness you were so lucky. I am 3 years post OvCa and had total hysterectomy with HIPEC. I live everyday on edge it is back. So heartening to hear you had 9 years before it returned.
What was your routine OvCa surveillance like at 8 years?
What was your CA125 value when your Doc ordered it for the bladder burning sensation?

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bocabuckeye | @bocabuckeye | May 20 12:28pm

My diagnosis has yet to be made. I've had post-menopausal bleeding, pelvic pain and discomfort, discharge, fatigue, and feeling full after eating small meals. A year ago, my gynecologist ran some tests, and despite the MRI findings, she determined that there was not enough tissue to perform further tests. Fast forward, the pain and discomfort are increasing; I'm searching for another gynecologist. My bleeding has happened only a few times each year.

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Mentor
Helen, Volunteer Mentor | @naturegirl5 | May 20 6:47pm

@bocabuckeye Welcome to Mayo Clinic Connect and to our Gynecological Cancers support group.

I’m rather confused why your gynecologist from last year said they did not find enough tissue to perform more tests.

What did the MRI show?
How long have you been postmenopausal and are you taking HRT?
Did you have an endometrial biopsy or hysteroscopy and/or dilation/curettage last year?
I’m asking because you mentioned tests but did not indicate which tests.

Is your primary care provider helping you to find another gynecologist?

I’m thinking you might have read what many of us posted here in this Discussion and your symptoms seem similar.

With the pain and discomfort increasing and bleeding, this seems very concerning to me.

I asked all these questions because if this were me I would want to see a gynecologist as soon as I could an appointment.

Finally, are you located in the U.S.? Canada?

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patientgirl | @patientgirl | May 26 8:37am
In reply to @jeanadair123 "Slight bleeding I noticed when I wiped after I went potty?" + (show)
@jeanadair123

Slight bleeding I noticed when I wiped after I went potty?

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Go have it checked out ASAP. I am 70, wone up, one mirning, went pee as usual, a slight “red blush” after wiping. Saw doc immediately and he got me in for historectomy. Had cancer and 1 Lymph in belly with micromataste. Had chemo, now starting keytruda.
I’m still in this life changing process. Don’t wait.

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