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Anyone experienced a fibromyalgia flare for 6 months?

Fibromyalgia | Last Active: May 20 6:09pm | Replies (25)

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@ellenblythe

I was diagnosed with fibromyalgia 25 years ago, but I started having chronic pain in my groin about two years after giving birth to my second child, so Ive likely had it 40 yrs. Fatigue and fiber fog are the worst symptoms for me. I do have a lot of pain, but the pain is from repetitive stress injuries or just getting stiff from sitting too much or working out too much. In other words, it’s not just a “ mysterious pain.” I have been a sober alcoholic for 32 years but that doesn’t mean I can’t use drugs that doctors prescribed to me. And I do use as many drugs that help me. I must have a stimulant in my arsenal, otherwise I cannot function- but I don’t use it every day. Right now I am using Vyvanse. This seems to work fine. It doesn’t really last any longer than Adderall or Nuvigil but when it wears off, it’s a little less of a crash. I have had terrible migraine headaches. For three months now I have been using injections of Aimovig. The number of migraines I am getting a month has reduced to about four which is amazing. When I do get a headache, I use Fioricet. This is a combination of caffeine, Tylenol, and butalbital, which is a narcotic, but a small amount. It is a controlled substance and my current neurologist keeps trying to make me try these new drugs that cost a fortune and simply do not work, he has a hangup about the controlled substance status. When I am achy and stiff, I use Soma or the generic carisoprodol. I cannot use any regular NSAIDs because they upset my stomach., I do have a prescription for Celebrex, which is a wonderful medication, but there is a stigma about it. Exercise is absolutely crucial even if I just do a little bit. Otherwise, I find that my depression gets worse and my body just sort of folds in on itself. i’m happy to have found this group and I hope this is helpful.

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Replies to "I was diagnosed with fibromyalgia 25 years ago, but I started having chronic pain in my..."

@ellenblythe Your story was very interesting to read. Thank you! You said that exercise is crucial. Well, maybe join our virtual walking group!
https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/
Is there anything specific we can help you with?