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@dde83

Hello, this is dde83. I have a mild case of MDS and have had success with retacrit injections. However, for the last couple of years the numbers have been up and down a great deal. I also take a D vitamin weekly because those levels have been low. My oncologist doesn't seem to be concerned with the fluctuation of the numbers and has not recommended any types of diet or supplements. I tease with my wife telling her I need to eat more fried chicken to get my numbers up...she doesn't buy that! Appreciate the information others have shared on this issue.

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Replies to "Hello, this is dde83. I have a mild case of MDS and have had success with..."

Hi @dde83! Wouldn’t that be great if fried chicken was the cure for MDS?!? There’d be lines around the block at every KFC or Popeyes!
Alas, food or supplements aren’t the answer to raising blood numbers when there’s an underlying issue with the bone marrow’s ability to produce an adequate amount of certain blood cells, as with MDS. Retacrit injections are helping your body to generate red blood cells and it sounds like it’s been very helpful for you.
However, eating a healthy diet high in fiber, rich in antioxidants / anti-inflammatory foods and low in processed products/unhealthy fats are always recommended. Haha, that may exclude some forms of fried chicken. 😂.

By the way, welcome to Connect! I’m one of the mentors in the Blood Cancer & Conditions support group. We have some great discussions with members who have MDS. You mentioned that you have a ‘mild case’ of MDS which I take to mean that you’re at low risk for progression.

I took the liberty of doing a quick search for you and found a lenthy list of conversations with mention of Low Risk MDS. You can look through a few of the links to see where you might be interested. Feel free to pop into any conversation with comments or questions.
Here’s the link for you:
https://connect.mayoclinic.org/search/?search=Low+risk+MDS
How long ago were you diagnosied with MDS? Was this found in routine bloodwork or were you having any symptoms which lead to the diagnosis?