1. < Prostate Cancer
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changes in penis appearance

Posted by postprostatectomy77 @postprostatectomy77, May 16 9:46am

has anyone experienced a lot of thick fleshy penis shaft skin, a wide shaft, and the skin covering the glans, hanging down making it so difficult to stand and urinate ?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

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postprostatectomy77 | @postprostatectomy77 | May 19 8:52am
In reply to @zzotte "Good grief, I have not started my treatment yet, I was born premature and with cryptorchidism..." + (show)
Profile picture for zzotte @zzotte

Good grief, I have not started my treatment yet, I was born premature and with cryptorchidism so the tool never got to its full potential LOL right now he is running scare some days takes me a few minutes to find it 🙂 you take two inches off I will have to pee thru a funnel hahaha

Zzotte

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I also have drastc changes, some length loss, there's mostly a huge widening and shaft thickening a hanging all around glans, extensive testicle size loss and scrotum lengthening and flesh loosening

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scottbeammeup | @scottbeammeup | May 19 9:06am
In reply to @ucfron "Thanks for the input. I am still trying to find out if the majority of these..." + (show)
Profile picture for WingNut @ucfron

Thanks for the input. I am still trying to find out if the majority of these changes to your penis was due to a prostatectomy? I have not been told these issues would happen with Brachy Radiation?

I am meeting with both a Surgeon and a Radiologist at Moffit Cancer Center (Center of Excellence) in Tampa this Wednesday and will specifically ask this question. I have been told that focal therapy is not recommended as a first line treatment, but again I will ask.

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I only had radiation and ADT and also experienced changes, so they don't seem to be unique to prostatectomy.

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pcrich | @pcrich | May 19 9:21am
In reply to @ucfron "Thanks for the input. I am still trying to find out if the majority of these..." + (show)
Profile picture for WingNut @ucfron

Thanks for the input. I am still trying to find out if the majority of these changes to your penis was due to a prostatectomy? I have not been told these issues would happen with Brachy Radiation?

I am meeting with both a Surgeon and a Radiologist at Moffit Cancer Center (Center of Excellence) in Tampa this Wednesday and will specifically ask this question. I have been told that focal therapy is not recommended as a first line treatment, but again I will ask.

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I did not have a prostatectomy. I had radiation therapy and ADT - as a result I have experienced major changes with my penis and testicles as previously described. Neither my urologist nor radiation oncologist discussed this with me prior to treatment.
Good luck with your meetings.

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2 replies
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dmccarthy104 | @dmccarthy104 | May 19 9:41am

Two items -- neither my surgeon for the RP else warned me about losing two inches in length and the penis basically retracting into my body.

And a pump and pills did nothing to restore length.

Cancer 18 months later is undectable but then so is my sex life.

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WingNut | @ucfron | May 19 9:56am
In reply to @pcrich "I did not have a prostatectomy. I had radiation therapy and ADT - as a result..." + (show)
Profile picture for pcrich @pcrich

I did not have a prostatectomy. I had radiation therapy and ADT - as a result I have experienced major changes with my penis and testicles as previously described. Neither my urologist nor radiation oncologist discussed this with me prior to treatment.
Good luck with your meetings.

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Ugh.. EBRT or Brachy and do your Drs think this had to do with the radiation or the ADT?

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postprostatectomy77 | @postprostatectomy77 | May 19 10:04am
In reply to @ucfron "Thanks for the input. I am still trying to find out if the majority of these..." + (show)
Profile picture for WingNut @ucfron

Thanks for the input. I am still trying to find out if the majority of these changes to your penis was due to a prostatectomy? I have not been told these issues would happen with Brachy Radiation?

I am meeting with both a Surgeon and a Radiologist at Moffit Cancer Center (Center of Excellence) in Tampa this Wednesday and will specifically ask this question. I have been told that focal therapy is not recommended as a first line treatment, but again I will ask.

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thanks, let me know

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postprostatectomy77 | @postprostatectomy77 | May 19 10:07am
In reply to @scottbeammeup "I only had radiation and ADT and also experienced changes, so they don't seem to be..." + (show)
Profile picture for scottbeammeup @scottbeammeup

I only had radiation and ADT and also experienced changes, so they don't seem to be unique to prostatectomy.

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I think penis shrinkage is due to the prostatectomy, I experienced it following surgery and the Lupron and radiation definitely added to it

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postprostatectomy77 | @postprostatectomy77 | May 19 10:09am
In reply to @pcrich "I did not have a prostatectomy. I had radiation therapy and ADT - as a result..." + (show)
Profile picture for pcrich @pcrich

I did not have a prostatectomy. I had radiation therapy and ADT - as a result I have experienced major changes with my penis and testicles as previously described. Neither my urologist nor radiation oncologist discussed this with me prior to treatment.
Good luck with your meetings.

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thanks, I would like to be able to share photos to see what others are experiencing to see if there similar

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1 reply
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mwilmert | @mwilmert | May 19 10:11am
In reply to @postprostatectomy77 "that sounds unique, narrowing at the base, you would think it would widen at the glans,..." + (show)
Profile picture for postprostatectomy77 @postprostatectomy77

that sounds unique, narrowing at the base, you would think it would widen at the glans, its depressing for all of us to accept our penis and scrotum changes, but were still vertical, are picture sending allowed ?

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Please. No. 🍆. 😂🤣

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 19 10:59am

Hi all, I appreciate that sharing pictures would be helpful. However, keep in mind that Mayo Clinic Connect is a public forum and viewable by anyone. As per the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/), it is advised to protect your privacy. Sharing images of genitalia is not permitted. Please see guideline number 6.

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