Hi, I didn't know so many people had had this operation. I had a very large para oesophagel hernia repaired about 3 years ago and have had digestive problems ever since. It was took 7 hours to repair and contained the majority of my stomach and also transverse colon. Now having problems with my colon and slow bowel motility. Was diagnosed with gastroparesis to start with and now rapid gastroparesis. Have nod idea if my vagus nerve was damaged as had a fundoplication was well.I am also not able to vomit The only symptoms were not being able to eat or breathe properly. My upper abdomen is full of adhesions from the operation. I live in Australia and have not had much help from any GIs. The only suggestion has been to get my colon removed.Sorry I am not handling it at all well.but pleased that other people have had some relief.
sorry you are having some much difficulties. Even with my hiatal hernia surgery I still get acid reflux which my surgeon says it is not. Whatever it feels like it and the only relief I get is with water and two Tylenol so far it works for me
Thanks very much for you reply. Pleased you have found something to give you relief. My colon is the problem now and my stomach isn't working properly. The GI I saw think the nerves have been damaged. Do you ever look up the Inspire Group. June
Hi, I didn't know so many people had had this operation. I had a very large para oesophagel hernia repaired about 3 years ago and have had digestive problems ever since. It was took 7 hours to repair and contained the majority of my stomach and also transverse colon. Now having problems with my colon and slow bowel motility. Was diagnosed with gastroparesis to start with and now rapid gastroparesis. Have nod idea if my vagus nerve was damaged as had a fundoplication was well.I am also not able to vomit The only symptoms were not being able to eat or breathe properly. My upper abdomen is full of adhesions from the operation. I live in Australia and have not had much help from any GIs. The only suggestion has been to get my colon removed.Sorry I am not handling it at all well.but pleased that other people have had some relief.
Sorry that you were left with the acid issues. I've battled it for years, but have a good gastro doc. I tried to get off the meds, but we found that won't work for me, so I now take a lower dose than previously. My doc says that if I experience occasional reflux to use some tums, plus you get your calcium as well. This works pretty well. Plus I recently found an OTC product called Phazyme Gas & Acid. It's hard to find something that will work for both gas and acid, but this does and if you get the chewable tablets, pretty quickly. Be sure you're watching your high acid foods as well - it's hard as there are so many of them, such as some fruits! If you're a coffee, black tea, or soda drinker that's a big deal. Try red Robois (wrong spelling I'm sure) teas as they are caffeine free and limit soda intake. Those alone helped me a lot. Good luck, and don't give up!
Hi, I didn't know so many people had had this operation. I had a very large para oesophagel hernia repaired about 3 years ago and have had digestive problems ever since. It was took 7 hours to repair and contained the majority of my stomach and also transverse colon. Now having problems with my colon and slow bowel motility. Was diagnosed with gastroparesis to start with and now rapid gastroparesis. Have nod idea if my vagus nerve was damaged as had a fundoplication was well.I am also not able to vomit The only symptoms were not being able to eat or breathe properly. My upper abdomen is full of adhesions from the operation. I live in Australia and have not had much help from any GIs. The only suggestion has been to get my colon removed.Sorry I am not handling it at all well.but pleased that other people have had some relief.
Thanks very much for your reply. No the doctors in Australia aren't interested in gastroparesis either. Quite a few of the tests for digestive issues aren't available in Australia which makes it difficult. Yes we get motilium (domperidone) over here. I stopped taking it as I was diagnosed with rapid gastric emptying but no one will listen. I did take them but my treatment has been one of total confusion but many people find them helpful. I wish I could smuggle them into America for you as I know there are a few people trying to get them.
Thanks very much for you reply. Pleased you have found something to give you relief. My colon is the problem now and my stomach isn't working properly. The GI I saw think the nerves have been damaged. Do you ever look up the Inspire Group. June
Hi, I didn't know so many people had had this operation. I had a very large para oesophagel hernia repaired about 3 years ago and have had digestive problems ever since. It was took 7 hours to repair and contained the majority of my stomach and also transverse colon. Now having problems with my colon and slow bowel motility. Was diagnosed with gastroparesis to start with and now rapid gastroparesis. Have nod idea if my vagus nerve was damaged as had a fundoplication was well.I am also not able to vomit The only symptoms were not being able to eat or breathe properly. My upper abdomen is full of adhesions from the operation. I live in Australia and have not had much help from any GIs. The only suggestion has been to get my colon removed.Sorry I am not handling it at all well.but pleased that other people have had some relief.
ladysky when I came to Maryland my IBS was out of control and was not even treated. When I finally could not tolerate the pains and bowl control I went to a gastroenterologist and he put me medication plus fiber and so far it is in control. Sometimes I think of weening off the medication but I feel since my IBS is under control why mess with it. I have missed days where I was not able to take the medication and nothing happened so I take my meds and move on
Thanks very much for you reply. Pleased you have found something to give you relief. My colon is the problem now and my stomach isn't working properly. The GI I saw think the nerves have been damaged. Do you ever look up the Inspire Group. June
.Hi If you google AGMD GI Motility Disorders Support Group & Community - Inspire.it should come up/ It stands for The Association of Gastrointestinal Motility Disorders support group and discussion community. It is a wealth of information regarding treatment etc and also allows you to vent and recommends doctors. There is a box on the right had side at the top where you can type in your questions as well and it will give you posts from a few years ago. It is world wide and covers numerous conditions and is a wealth of iinformation. Hope you have some success joiining the group. June
Hi, I didn't know so many people had had this operation. I had a very large para oesophagel hernia repaired about 3 years ago and have had digestive problems ever since. It was took 7 hours to repair and contained the majority of my stomach and also transverse colon. Now having problems with my colon and slow bowel motility. Was diagnosed with gastroparesis to start with and now rapid gastroparesis. Have nod idea if my vagus nerve was damaged as had a fundoplication was well.I am also not able to vomit The only symptoms were not being able to eat or breathe properly. My upper abdomen is full of adhesions from the operation. I live in Australia and have not had much help from any GIs. The only suggestion has been to get my colon removed.Sorry I am not handling it at all well.but pleased that other people have had some relief.
Sounds like you are doing well with the medication and missing one isn't a crisis, which is a good thing because we all forget now and then! Keep up feeling good and keeping it under control!
Thanks very much for you reply. Pleased you have found something to give you relief. My colon is the problem now and my stomach isn't working properly. The GI I saw think the nerves have been damaged. Do you ever look up the Inspire Group. June
Thanks very much for you reply. Pleased you have found something to give you relief. My colon is the problem now and my stomach isn't working properly. The GI I saw think the nerves have been damaged. Do you ever look up the Inspire Group. June
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sorry you are having some much difficulties. Even with my hiatal hernia surgery I still get acid reflux which my surgeon says it is not. Whatever it feels like it and the only relief I get is with water and two Tylenol so far it works for me
Thanks very much for you reply. Pleased you have found something to give you relief. My colon is the problem now and my stomach isn't working properly. The GI I saw think the nerves have been damaged. Do you ever look up the Inspire Group. June
Sorry that you were left with the acid issues. I've battled it for years, but have a good gastro doc. I tried to get off the meds, but we found that won't work for me, so I now take a lower dose than previously. My doc says that if I experience occasional reflux to use some tums, plus you get your calcium as well. This works pretty well. Plus I recently found an OTC product called Phazyme Gas & Acid. It's hard to find something that will work for both gas and acid, but this does and if you get the chewable tablets, pretty quickly. Be sure you're watching your high acid foods as well - it's hard as there are so many of them, such as some fruits! If you're a coffee, black tea, or soda drinker that's a big deal. Try red Robois (wrong spelling I'm sure) teas as they are caffeine free and limit soda intake. Those alone helped me a lot. Good luck, and don't give up!
Thanks very much for your reply. No the doctors in Australia aren't interested in gastroparesis either. Quite a few of the tests for digestive issues aren't available in Australia which makes it difficult. Yes we get motilium (domperidone) over here. I stopped taking it as I was diagnosed with rapid gastric emptying but no one will listen. I did take them but my treatment has been one of total confusion but many people find them helpful. I wish I could smuggle them into America for you as I know there are a few people trying to get them.
what is the inspire group?
ladysky when I came to Maryland my IBS was out of control and was not even treated. When I finally could not tolerate the pains and bowl control I went to a gastroenterologist and he put me medication plus fiber and so far it is in control. Sometimes I think of weening off the medication but I feel since my IBS is under control why mess with it. I have missed days where I was not able to take the medication and nothing happened so I take my meds and move on
.Hi If you google AGMD GI Motility Disorders Support Group & Community - Inspire.it should come up/ It stands for The Association of Gastrointestinal Motility Disorders support group and discussion community. It is a wealth of information regarding treatment etc and also allows you to vent and recommends doctors. There is a box on the right had side at the top where you can type in your questions as well and it will give you posts from a few years ago. It is world wide and covers numerous conditions and is a wealth of iinformation. Hope you have some success joiining the group. June
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2 ReactionsSounds like you are doing well with the medication and missing one isn't a crisis, which is a good thing because we all forget now and then! Keep up feeling good and keeping it under control!
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1 Reactionemeleen thanks I will try it
Thanks for site have GI issues
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